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"Response shift through reprioritization was indicated for the items “Physically, I feel exhausted” (CFS) and “I tire easily” (cancer, diabetes), which became less vs. more important to the measurement of fatigue, respectively." For not just CFS but cancer and diabetes. Given all need to be in...

Have they evidenced any of these? I was still doing a pretty physical job (despite being moderate) when I had a synacthen a decade ago and had to change roles. I've been severe for a number of years when I had one more recently. The results were pretty much identical. I highly doubt my body...

I think there is something to be said for needing to clear down or allow for clear down of inaccurate medical records. Surely even those in the medical profession must admit that we've had years of people going to GP and being told its some sort of mood disorder as a first presumption for...

How quickly does that happen - if someone was highly active and then gets long covid?

Am I right to assume the refs that don't have Fukada in brackets don't use Fukada? If so was it tighter or looser criteria for these studies?

Sort of agree but given that the range/line for the LC box comes down to 0, with some people at 0 (which would have a pretty heavy impact on a mean) I'd have to have a closer look to see whether how much this is one or a few with a very significant issue impacting the mean. I haven't gone...

thanks for the heads up - made me realise it is in the figures section. Hm interesting, there is a reasonable enough std deviation and slightly frustrated the 'difference between resting vs stimulated' isn't reported, don't quite know how that would be useful but I guess std deviation again...

you can tell how my week has been when say snarkily that with an image like that (can you GET more 'I'm into positive thinking'?) ... EDIT: I meant the 'Done' image with the tick through it, but having looked can see the comment isn't unapplicable to the others

OK had a proper-ish read through within my capabilities today. They did a synacthen test at the beginning and end which is in the adverse events section. They put bits in the literature review/intro about theories on blunted cortisol response in CFS. But they don't seem to have noted - unless...

Yes in a sense I can see why certain things can be circular because if there are different types (of either ME/CFS or indeed a medication or 'the regime' of it) you can see how things can cycle round where there is good reason due to a development. But I like the fact that whilst this is...

The following para is interesting: "Efforts to identify causative factors in CFS are evolving as hypotheses are generated and tested. In the early 1980s it was speculated that persisting Epstein-Barr virus infection sustains the symptoms of CFS.9 That notion was rejected after careful...

@Sarah94 Sorry I didn't realise there were pics on the twitter thread. I have to agree that these look bigger even than the ones I have - which I got from LLoyds pharmacy (although I'm cautious that this was a while back so they might've changed what they sell) the order confirmation says...

Tricky one. Only an idea to try, but I have a small nose/face and have found with mine I put them 'high' and pinch the wire to sit it right on the top of the bridge of my nose - on some masks that has meant having around 1cm 'pinched together' so it sits like a line above my nose (if that...

So this seems to be from 1998, which to me underlines how if there were some sort of 'organised' function of going through the logical possibilities needing to be narrowed down and finessed over that period of time we all might be in a very different position. Part of it is obviously politics...

Agreed. But as a point really I think the main ME websites should have a section on this - I hate it being subsumed under the term 'intolerance' or 'sensitivity', because sadly in today's day and age that gives too many an excuse to suggest the problem is 'all ours' or one of perception and only...

With the various terms that are getting pushed - is this PASC term including people who had acute severe covid (in intensive care) and are 'recovering from that slowly but surely' lumped in with the long-covid, where they were never in hospital originally? I'm very concerned from what I've seen...

It seems to do a better job than most and is much more specific to the type of things found in ME/CFS that 'come under that mileu' rather than trying to claim 'a lumped entity of brain fog' - giving it the grace that noone is perhaps positioned to yet 'pull it all together' (different patterns...

Interesting - I seem to recall something like that being used for something else in either the same series or something very much like it for something like recovery or hydration after exercise? And it talking about nitrates or something being the reason for its choice? I've found this but no...

THIS is great to see. Probably the first article (certainly in a long time) that seems to be written by someone who knows what they are talking about. Would like to see this shared by MEA and other sources It also brings up the need for us to push towards getting scientific parts of psychology...

The worry is that no matter how not very far along research has got on these 2 areas, the punchline for such things always ends up with definitive suggestions for sleep hygeine and CBT being 'the answer' I say that knowing that getting people to understand ME/CFS is different to the collection...