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    Is PEM a crash? Is a crash PEM? Semantically distinct? Or distinct phenomena?

    I’ll be honest I use both in ways in my head that apply to very distinct things. A crash can be caused by a virus, after I got first vaccine, as well as PEM type stuff. Though I guess those are exertions. Something eg building noise can cause PEM but the amount, frequency vs breaks can either...
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    ME/CFS services in the United Kingdom

    'Familiar faces' with that dept label being based on the patients being seen lots by the health system? I can't help but think it's just another version of 'frequent flyers' - is that a label that is going to brand patients, particularly if they might well (often the case with these ideas) end...
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    A systematic literature review of randomized controlled trials evaluating prognosis following treatment for adults with CFS, 2022, Chalder

    Maybe - I'm sure they'd try to argue about 'power' (sample size) being incoprorated into the p score or whatever it is they used, but there will always be a sense of throw enough at the wall you might get something to stick and if it doesn't make sense in relation to the other things measured...
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    Functional neurological disorder and placebo and nocebo effects: shared mechanisms, 2022, Fiorio, Edwards et al

    I know someone old who was nearly carted off to a residential home for dementia when it was sodium deficiency. The latter is far from a zebra - so I'm not sure that phrase does much good in medicine when it can be extrapolated by some to excuse not looking at basic differential diagnoses (which...
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    United Kingdom - Thérèse Coffey appointed Secretary of State for Health and Social Care, Sept 2022

    Just read that the Dr for Dr Coffey is Doctorate in Chemistry at UCL - whether that has any relevance re ME/CFS science happening currently or already done would be interesting to know? The title is: Structural and reactivity studies of bis(imido) complexes of molybdenum(VI) link...
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    Tom Ingman (Research Student) - Chalders protege? bPS Nextgen

    Agree - which is why ForwardME have an important job to do of ensuring that 'exclusion of ME' is made an absolute requirement before anyone is referred to their various 'fatigue/PPS' type programmes. This is a safety issue and should be billed as that and put under the heading 'duty of care' -...
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    The emotion regulation process in somatic symptom disorders and related conditions - A systematic narrative review, 2022, Schnabel et al

    thanks for the summary - sounds like a manifesto for hysterical women ideology and how to sanitise/pretend it's 'science' and 'logical'. oh sorry, I mean justifying oneself having that ideology. How much actual logic is there in here? Maybe we could get some professional from the right area to...
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    Landmark trial of NHS staff by King’s College London reveals promising solution to improve mental health

    If this is workplace-based I can't help but feel 'other factors' need to be mapped into any claims regarding influence. e.g. if people with issues started getting sacked, disciplined etc more over the time period of the study that might account for 'improvement in responses' for reasons very...
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    JK Rowling new book — chronic illness references

    Thanks for posting this - it is really useful. Also makes me think that it is quite a powerful list when you consider the BPS focus on 'personality characteristics' (and making new ones up indeed - as 'perfectionism' isn't really a real personality description as per the science of psychology...
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    News from Doctors with ME

    Aww sorry but rather than comment on the actual tweets or person I just feel like I hate this sort of thing happening on social media (or wherever I guess). I'm not really that old-fashioned in the reason behind me saying certain vehicles/mediums are designed to be short and punchy soundbite...
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    JK Rowling new book — chronic illness references

    100% agree. Which of course diverts attention from 'who would write such a thing about another human being' and judging their personality and the personal qualities/failings the writing itself shows. Currently it is utterly uncalled for picking on the weakest person that can be found - don't...
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    JK Rowling new book — chronic illness references

    You mean the tendency to laugh at the person for 'being miserable' when you've played a part in making their life such that anyone would be? I'm puzzled by the weird thing of 'being happy' apparently makes people likeable - it goes against all logic in that people who do what they want and might...
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    Trisha Greenhalgh on ME/CFS and Long Covid

    Sounds like the social media equivalent of the person who surrounds themselves with 'yes men' and using the old-worn by BPS tactic of then claiming that anticipatorarily (whatever the word is) blocking anyone who reads science assuming they might say anything other than 'yeah read the abstract...
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    United Kingdom: Vitality360, a private company treating ME, fatigue and pain

    "Life after ME/CFS" Really? I just can't help thinking when will these people stop and give us a chance of a life or hope of not having bigoted nonsense thrown at us daily. Sounds like they are trying to market the condition as 'lifestyle'. And to pretend it is curable or whatever they've...
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    First test for long Covid gets EU approval, August 2022 - IncellDx incellKINE Long COVID test

    This seems a bit out of nowhere - I've heard of the man and the company but not in the context of anything produced being 'nearly there'. Then suddenly something suggesting a regulator is taking the 90% effectiveness claim as correct. What have I missed? does the 'Kine' bit assume they are...
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    JK Rowling new book — chronic illness references

    This. I read through @Shadrach Loom 's post with interest, mainly because I decided I couldn't be arsed jumping in until I knew the context. What a strange thing for her to decide to do as a next step after she'd had all of the turmoil from her trans comments. Writing troped bigotry about...
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    United Kingdom: North Cumbria Integrated Care Trust (Dr Alastair Miller)

    Interesting. It is a good response. Looks like we are getting to that point of 'when a service isn't for ME/CFS at all' but some amorphous PPSS or fatigue etc. In theory this could be seen as 'a clean break' and investigations into funding come up ie (to avoid getting into the separate...
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    (Not a recommendation) Alastair Miller on CFS

    Which = what? Gravy train/confirmation of being at the wheel of all this, or 'claimed eminence'? Potato potato unless you look at the state of where treatment and level of debility for those with ME/CFS is: "Having been involved in working with patients over many years in the development of new...
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    United Kingdom: North Cumbria Integrated Care Trust (Dr Alastair Miller)

    What is a 'trans-diagnostic fatigue clinic'? I get that you need to market things when it is books etc, and Nietsche's good life sort of gives lessons in this direction, but I say this frankly as a real question: who do you have to be to think you can tell others 'how to live' to the extent of...
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    United Kingdom: North Cumbria Integrated Care Trust (Dr Alastair Miller)

    Woww. 'they say' interesting turn of phrase I feel indicates certain things (given it is the entire Nice process and all the professionals involved he is effectively 'calling the cat's mother' ...
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