Search results

:laugh:

I think that (and it is obvious from looking at some of the fb groups and so many having to write posts anonymously, and I understand why they do) lots of people with ME/CFS have to hide it. Or certainly don't make it public beyond those who either need to know or are trusted. If it isn't their...

https://www.thetimes.co.uk/article/finally-time-reform-outdated-mental-health-act-hvzbzpchs It’s finally time to reform an outdated Mental Health Act Thought I'd add the link here wimpishly before I have read it myself. I'm doubting it is specific to ME/CFS as title says it is about the mental...

agree on the interesting point of seeing if there are issues that are ‘across the board/generalised’ and also vice Verda it is useful to point out where strange things in process have been ‘particular to’ ME/CFS by comparing similar enough areas. It might in that context allows for arguments...

Agree with the past ‘approach’ of CFS being literally used as a place to dump people with no investigations in order that they don’t have to do any investigations is a big issue. one outcome of this (along with the issue on recovery stats and people who maybe didn’t have it claiming their...

I also wonder whether there is also the issue that not enough good messaging getting through about how bad it can get and the different connections between milder and those more severe states ie lots of people when more mild made to feel ‘but there are other illnesses that are much more serious’...

:laugh:

PS I love how the same people then cite the biopsychoscial model saying they are being 'holistic' when they can't even see so far as too treat someone's health problems as a cumulative health instead of imagining what you'd do if you had some imaginary disease where you just needed to increase...

Oh the old reframing because you can't deal with reality trap. Exercise isn't a drug, and so the whole 'dosage' stuff is nonsense, much as they'd like to use it as crappy marketing spiel. And it's even more crappy given that drugs and dosages have damned more strict licensing and regulations...

Or were these given intravenously? I can't tell any of this from the abstract but it feels the only way it could have been blinded or done as a placebo. morphine is sour as heck and not in pill form. I don't know what form naloxone or the placebo they used was but I though naloxone (admittedly...

More like the time-difference accounts for the placebos in the middle being the group where anything varied. Some of whom the initial anesthesia had worn off already, others who hadn't at 3hrs? "Patients given naloxone [at 3hrs, the first time point] reported significantly greater pain than...

He gets a few things right in his last para. "The study of weakness and fatigue leads to a consideration of medical problems covering nearly every area of medicine" and "IN any case these symptoms warrant thorough and complete investigation" But these sandwich the worrying part...

OK that is interesting that anemia is mentioned and was tested in some form as it was found in 5 cases (1.7%), but I don't know enough detail to know whether back then the reference ranges and tests would cover all the anemia and individuals who might come under that term today. If it is 5% of...

OK so the first few paras here (which begin at the end of the previous post) are pretty key insight into how these things used to be seen. The last para about 'benign nervousness' which is deemed caused by extrinsic rather than instrinsic (where it is neurotic) factors such as overwork is...

Agreed. It is common enough I don't fully understand why there aren't proper centres for it, they'd have gotten to the bottom of some mysteries and it seems a lynchpin measure that might help understanding of/flagging other conditions too. And we don't have more haemotologist or combined certs...

I think they specifically use the term distress as a wind-up to be honest. A term used alongside hysteria. To me in this context it feels like it corresponds to some doctor whispering behind the patients back about how she's getting herself worked up because her hand apparently doesn't feel...

I held my breath until I got to the end of the names there... I think having read Netherlands, Norway and England being named first and waiting to check the 'you know who's' from there hadn't somehow snuck in

Yeah it just feels like there needs to be a new law (which I'm aware would need to be adopted by country probably) and regulation/standard for submission to journals that these items can only be submitted where the author is an assigned independent without any connections or conflicts. I say...

Yep, the past traumas quote seems a straight laugh on the following theme, surely just boundary testing to see if you can get away with blaming someone coming round having been affected by anaesthesia must instead 'have past traumas being resurrected' as their possible cause, or maybe they just...

EDIT: please tell me that the dry eye was actually measured by looking at it with microscope, because I'm wondering why there are questionnaire results for dry eye, when I wouldn't necessarily have noticed before I saw an opthamologist I had these - just itchy and sore etc. Surely they'd use the...