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    The Chrysalis Effect

    What a snivelling, shifty, tap-dancing response it sounds like they think they can play advertising standards too. I expected little different from them though. Does anyone know if this person who runs it and claims to 'have recovered' so endlessly had any condition officially confirmed and...
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    Review Effectiveness of physical activity interventions on reducing perceived fatigue among adults with chronic conditions: .. review.., 2023, Barakou et a

    And this report has managed to highlight the real issue at hand that has been undermining evverything for so long: an ambiguous definition of fatigue that means it doesn't require methodology that removes/isolates the psychological concept of 'fatigue' from the physical understanding of...
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    The Dallas Bed Rest and Training Study, 2019, Mitchell et al.

    so they’ve claimed 30yrs of deterioration from 2weeks bed rest, based on 2/3 people with no interim checks over 30yrs? 2/3yr follow up would be interesting as might this if large enough number meant matched pairs wasn’t necessary but those numbers would need to be huge to account for so many...
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    The Dallas Bed Rest and Training Study, 2019, Mitchell et al.

    Have I missed an actual control cohort where they had people not doing the bed rest first and then doing the training? 55 days physical training sounds heavy and I’m not fully sure what they thought they were showing/proving/testing?
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    Functional Neurological Disorder (FND) - articles, social media and discussion

    Yes I can't tell whether the source of the issue is actual grandiosity or whether it is just cuddling bigotry so hard in order to keep being able to use conversion disorder whilst claiming they aren't bigots and tricking a new generation by making the words so dense and the rhetoric not...
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    Review Psychological therapies delivered remotely for the management of chronic pain (excluding headache) in adults, 2023, Rosser et al

    Technically marketing is orienting to customer need, this is sales of stories or I suspect not marketing to the end-user at all but propaganda and sales to internal markets based on stating their cost is low and fudging the idea that it has any 'use'. The inclusion of the following line at all...
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    Sudden realisation(trigger warning)

    It would be interesing to know if that was the case with other countries and psychosomatics, particularly in the ME-specific but in the 'general' of not looking further than psychosomatic just watch for example Chicago Med (US) tha seems to have a large amount of 'conversion disorder' stuff...
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    Hypothesis Long COVID as a functional somatic symptom disorder caused by abnormally precise prior expectations during Bayesian perceptual processing, 2023, Joffe

    I'm so bored of this pretend job area existing explicitly to allow individuals to basically troll vulnerable people with bigotry - which is what this is - and then pretend it is 'Ok'd' rather than just hatred and rumour-mongering to do harm of the worst kind. There is nothing logical or medical...
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    United Kingdom: Derbyshire Chronic Fatigue Syndrome (CFS/ME) Service

    I find it unacceptable and unforgivable. I agree with others elsewhere talking about being nice to sides that basically say they don't care on the very 'claimed reason for being' point who think snaffling off the naff narcissistic term 'it's a debate' like 'it's a puppet' is funny. And I don't...
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    All-or-Nothing Behavior and Catastrophic Thinking Predict Fatigue in Inflammatory Bowel Disease: A Prospective Cohort Study 2023 Moulton Chalder et al

    Also from the referenced paper of Artom et al (2016) that found no correlation with fatigue in general, and no causation: https://onlinelibrary.wiley.com/doi/full/10.1111/apt.13870 My bolding. Again the impression seems to be (and there is more detail on the other scales but I didn't want...
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    All-or-Nothing Behavior and Catastrophic Thinking Predict Fatigue in Inflammatory Bowel Disease: A Prospective Cohort Study 2023 Moulton Chalder et al

    Yep it is as irrational and illogical in train of thought as a box of frogs. And the entire introduction a lesson in using rhetoric rather than academic literature as inferences of connections seemingly must be inferred just by them putting the lines next to each other - when did that become OK...
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    All-or-Nothing Behavior and Catastrophic Thinking Predict Fatigue in Inflammatory Bowel Disease: A Prospective Cohort Study 2023 Moulton Chalder et al

    So they didn't check whether those 'negative assumptions about outcomes' were actually accurate to the same people 'having negative outcomes' - which would mean that it had nothing to do with thinking. In fact it is probably pretty hard to manage a condition like IBD without learning to be...
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    UK Times and Independent on ME misdiagnosed as Lyme disease, August 2023

    You'd think the moral and rational conclusion of someone who cares enough to write as vehemently as the author did would be that there should be more investment in good clinical centres and research into these diseases to ensure that better tests are developed. Maybe I'm wrong but when I read...
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    The importance of screening for functional neurological disorders in patients with persistent post-concussion symptoms 2023 Debert, Silverberg et al

    Erm given the first correlation that they saw was that there was a strong correlation between those who had severe post-concussion symtpoms and their claimed 'FND score' then aren't all of the inferences they have made in their conclusion actually about the real construct of post-concussion...
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    Review Understanding mental fatigue and its detection: a comparative analysis of assessments and tools, 2023, Kunasegaran

    This is really poor on stress too, as it is relevant. I don't know why I'm surprised but they've just done a few lines saying 'sometimes increased stress can reduce fatigue' but then descend only into their cliched narrow definition of it. Even in the consumer behaviour literature they are...
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    Review Understanding mental fatigue and its detection: a comparative analysis of assessments and tools, 2023, Kunasegaran

    TO me the generic phrase 'mental' fatigue rather than cognitive or other more specific terms (including sensory effects) is an indicator of this being another rabbit hole (and the usual mixing up the migrainey almost inability to see from sensory bombardment/overdoing it with 'brain fog' or 'not...
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    Trial Report Pattern of Post COVID Fatigue in Elderly Patients, 2023, Gaber (ME/CFS is also discussed)

    If they exclude 'the one who had fibro and PEM symptoms before covid' then they are talking about 6 with PEM out of only 16 over 70yr olds referred to the service That is still around 30%, and then there is the question of the level of severity because there is a chance that age group has more...
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    Sudden realisation(trigger warning)

    I think having articles that back this up makes a huge difference. It is hard to describe a whole world to people. And the information on energy-limiting is so poor. I do like the video-game idea where for example you have an alarm going off which is draining your egg-timer, but you'd have to...
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    Sudden realisation(trigger warning)

    Actually I think that patients historically not having told or corrected people they know has been a major issue in the predatory awful stuff I've had thrown at me. I believe that for those who are most targeted by the awful culture and people who mightn't think of themselves as predatory...
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    All-or-Nothing Behavior and Catastrophic Thinking Predict Fatigue in Inflammatory Bowel Disease: A Prospective Cohort Study 2023 Moulton Chalder et al

    I'm sorry but I can't help but assume there is a lot of 'priming and seeking out phrases and leading horses to water' involved with claims of 'all-or-nothing behaviour', particularly when it is being used by certain people as an explanation for why someone has worse x than others. I highly...
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