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Why is it that you can find many articles of recent years warning people of this particular topic/habit for those with cancer and how people need to perhaps stay well off it because of the harm it can do with insinuation vs not comparing like with like vs giving people dread. (EDIT for sense)...

Firstly it sounds like they are looking at FND diagnoses and not 'FND' given I don't see a bit where they thoroughly checked alternatives. But pretty importantly what was the point of this - I'm not sure what these people think their 'research question' is underneath their methodology. I'm not...

I see your point but their 'to enable recovery success' is untrue. It doesn't, whether it is a patient or someone who decides to deliver a course to them there won't be any 'enabling' or 'recovery'. If she was selling a course entitled 'how to scam vulnerable people with ME/CFS or CFS or...

Agree with your comment. It is so deceitful or incapable of reading and understanding. Whichever of those two is their issue, given the amount of time and clarity in the Nice 2021 guideline that they do not recommend anything that is of the paradigm that ME/CFS is perpetuated by deconditioning...

I would agree in most of this having been similar for me. I can't believe that I just had to remind myself that it is B12 injections for me that made the difference because for a moment I used to remember being at work and so many FRidays having to race home with migraine whilst I could still...

Agreed that organisational responses are particularly important for pwme and need to be done by charities. Even if they do find some way of reaching out to those (and sub-grouping them if you think severe vs moderate vs mild might have different issues) who they are providing the voice for -...

took a while for me to find it: https://www.s4me.info/threads/solvemecfs-initiative-ot-the-role-of-occupational-therapy-in-care-for-me-cfs-presentation.29520/ now going to insert in its place in the comment too

The irony with ME/CFS and PEM (and there is a really good ‘flip the iceberg’ slide in a presentation on how Occupational Therapists can approach/support ME from Amy Mooney...

This 'it was never any cheaper' needs to keep being hammered home, along with the money going in its directions vs no proof of it really significanly helping most patients - many of whom might have had significantly different lives and prospects if the 'standard care' which probably was cheaper...

By one of the few people that, if they are brave enough to do it and lucky enough to survive doing so, will have a chance of being heard rather than various mental justifications people use for writing it off Bystanders are so important in validating patterns by speaking up or them being...

This is literally just the first result in a quick google for whether PANS?PANDAS respondds to ativan, so haven't analysed methods or bias etc PANDAS with catatonia: a case report. Therapeutic response to lorazepam and plasmapheresis, Elia et al (2005) https://pubmed.ncbi.nlm.nih.gov/16239863/...

And PANS/PANDAS is one that every so often I see trying to be flagged as existing by those who I assume there often have experiences of it not being thought of enough as a differential diagnosis, the symptoms listed made me think of that initially too but it doesn't note it being ruled out...

I'm noting your description of the method not involving anything 'invasive' for the muscle and to me that seems like it could be a potentially significant thing if it can be something which could be used as a measure where perhaps other methods which might involve biopsy or something invasive...

Sorry just corrected original post ILM is institute of leadership and management

CMa is competition and markets authority. with e.g. university courses then the information on brochures and websites has to be accurate and provide examples of evidence for each claim made in any materials the ILM seems to be what this course is claiming it is 'with' and that might be the...

You are 100% correct and I’ve noticed it is the neuro journals focusing on FND that seem to be almost 100% only abstract accessibility pre paywall. and who knows what the actual truth is in the ‘research’ vs the claims in the abstract because these are not the normal format snd are method...

Great. Now as this is a course she offers then the CMA need to be looking into flase or unevidenced claims the the description and materials and I do think if the ILM is allowing this to be listed then there is a quality assurance issue rd the content too ie it shouldn’t be being advertised but...

It was interesting because yesterday (or maybe say before) I watched the daily politics show for a bit and, in relation to another topics (I think the getting sick people to get jobs working from home) Chris Bryant MP noted he worked closely with people with brain injuries and a big issue there...

They should be required to retrain for saying this nonsense - if you can’t read something without inverting it that’s just not an excuse to keep your job where there is a responsibility to be on top of these things where is the self-respect anymore

In fact don’t good training regimes for athletes require rest days isntvripping of muscles literally that and requires therefore time when you aren’t ripping them in order for them to grow back stronger hence ‘leg days and arm days’ it used to be that if someone got twitchy not being able to...