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the poor so and sos with this condition. It really isn't on anymore for dodgy sections of certain subjects to be allowed to continue with made-up personality terms just to slight people with certain conditions. These really are inventions as per psychology with things like 'perfectionism' not...

I'm a bit confused, as I can't access the full article (and also the conflicts of interest they note are at the end of it), what they think is 'managing FND' from this. I was initially anticipating given a scan of the measures that it would be seeing whether diagnosis and treatment improved...

I'm wondering whether looking into old generations of specialisms like Occupational Therapy and Occupational Health papers might be interesting context. When you get more and more disabled and have to go through various processes one thing becomes clear that is hard with ME/CFS and that is...

Some really important questions here I often don’t see raised and often assume it’s because others definitely think bite size chunks vs do it all then rest (whereas it’s been more complicated than that with me albeit so many caveats) I’d love to see an individual thread on some of these...

it’s revelling in cruelty that last one. Yes they each need to be sued, job removed, black mark making them unemployable - which being a disability bigot and harmed should do just as you’d expect for anything else. Something has gone wrong in the funding of the follow-up process that does this...

Clearly a mental health bigot too. Love that people have been misled into thinking with that one that if they use the right term then their insinuation of hatred is somehow acceptable or care. That’s BS it’s clear from this they mean ‘have issues need to be dealt with’. From hilariously the...

There needs to be legislation to ensure those people are properly funded and assisted to do so. And I also think a flaw in too many systems is that the individual isn’t named and able to be sued personally and criminally prosecuted for the consequences of their chosen actions. That’s the only...

Almost word for word what I’ve heard Sharpe say I’m pretty sure. It’s all just vile rumour monger made up crap to wind up and play mind game politics. How on earth did he get away with that and keep a professional job nevermind a whole profession think copying such bullying words is ‘de rigeur’...

I still feel a rub my eyes in disbelief moment when I read the anti-mental health ‘psychology’ (only a psychology in as far as it being someone’s warped mindset ie a bigotry and bps is weak attempts at justifying it with sophism that neither adds up completes the circle nor makes sense) taught...

Good point. I can't read the full text and either way I find this really very potentially worrying at the likelihood that either the article itself doesn't look into whether the difficulties are externally caused by the very paradigm they are likely to push a child into (and ergo increase harm)...

but not to listen to the ones who haven’t ‘recovered’? Interesting q to be asked about when you’ve ‘recovered’ from the me/cfs version of long covid vs ‘it just didn’t last that long ‘long covid’ ‘ and you were lucky enough to get rest in the crucial early months etc sad that it feels like...

Side note but relevant I saw on Fb someone talking about a slide from the Berlin conference that compared approaches where consideration to PEM was used and wasn’t in Long Covid. It looked pretty good but was linked to research yet to be published I think. Does anyone know what I’m talking...

Bit of a side note (now I’ve checked) but I remembered reading about a place people with me/cfs apparently went to live because there was a treatment offered but they needed to be in town etc years ago so looked it up just in case it was this one but it isn’t (it’s one in Invline Village Nevada)...

Says a lot about what’s behind all this that we’ve got Mintel studying it ‘as a market’

It says 'the full report is now available' in this but I'm struggling to actually find it - I don't know whether it is the first link at the bottom because it doesn't translate for me

This is above my head a bit when reading, and I'm not quite there really on assuming ME/CFS is necessarily a state of hypometabolism/hibernation this is an interesting read for putting different aspects out in different sections. Towards the end in section 26 it was interesting to see slightly...

Good point, the BPS/psychosomatic aspect is probably the one simplistic bigotry of a 'part of medicine' that it can be mimicked and become hard to tell troll from professional - which sort of says it all about its scientific integrity, non-complexity, who it's attractive to and why, and where it...

Agree, we need trope lists. And the medical profession is bad, but it is spreading into other organisations too and is quite astounding when you compare the level of trope vs equivalent for e.g. what that would be re: race or gender or age and so on. In its totality this is 'rounding-on' a...

I’d say reasoning is intact but it’s executive function/working memory vs load. the classic issue is just to add in any multi tasking or multi sensory - which for us we might already have by virtue of our symptoms and environment that day. but not if someone distracts me mid sentence with a...

Hmm I can't get past the story of Linda Evangelista albeit cyrotherapy for fat reduction rather than inflammation or here the other suggestions being neuro it seems there is risk of it backfiring which was apparently rare but how do we know. As it is paywalled I can't even tell if these are...