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Yes, it’s all the FDA’s and Pharma’s fault! That’s sort like saying, “The devil made me do it!”

https://www.facebook.com/ArchbishopJimHumble/ And the scam continues, with a slight twist, as they are now asking for money to free the Felon, on probation, who once sold MMS. I have been watching a film about Bernie Madoff, who scammed 4,800 people out of $64.8 Billion Dollars! Scamming is...

Besides the L-Argenine Stim test, which ones do you recommend?

Heck that’s an easy one! 2 PM London time is 6 AM Silicon Valley time. So get a remote job with an employer headquartered in Silicon Valley. The pay is excellent, and if they fly you out, you will find the California weather to be awesome. California boasts Stanford University (Montoya, M...

S4ME membership is a “gold mine” for hidden treasures. Regarding marketing campaigns, we have our own resident expert. Don’t let his cute and adorable presence fool you, @arewenearlythereyet is the best sloth for the job. :thumbup:

Yes, I agree. No PwME should be left behind. We are complex creatures. If I could hit the “like” button, multiple times I would. Much more needs to be examined, studied, and tested. This thread was about pituitary, so I was focused more on that aspect (since it regulates hormones) in my posts...

How exactly is that determination made? I am not aware of a test that tracks the signaling from the pea sized gland? What exactly is enough?

The pituitary gland is the size of a pea. The hypothalamus is the size of an almond. I agree with you, most of our issues COULD stem from these small glands. My take on the past 30 years: The big named doctors, academia scientists, and Nath from the NIH, I agree, they have no idea where to...

I had hypovolemia shock and almost died. Wow, this is all starting to make sense to me now.

I am thinking this phrase is really a metaphor for our S4ME community fighting spirit! :party:

I can’t offer you a “salt shaker” emoji, but this emoji is tagged as “Dizzy” :emoji_dizzy: And this emoji is tagged as “levitate” :emoji_levitate: So maybe, the best description for OI/NMH/POTS is :emoji_dizzy: :emoji_levitate:

I am sorry. It’s frustrating, I agree, ME is not glamourous. Please try to hang in there. We are openly taking about this, which is a good first step. Meanwhile, I will try to find someone that does care.

No idea is this would be helpful, but found some more information. https://radiopaedia.org/articles/pituitary-gland

Given the pituitary gland is the size of a pea, it’s amazingly responsible for a lot of functions.

I wondered the same thing too, but more specifically used to define one subset of ME. I am defective in one other ways, for example I have a funky PTH receptor. So maybe I might span across 2 different subsets? Power to the Patient! Perhaps S4ME will define the first ME subset?

Maybe it’s worth a S4ME poll to see who else suffers from known pituitary issues?

I had an MRI of my pituitary and was told the report said it looked completely normal. With this new information, just relayed, I will pick up a DVD copy, and take it to another specialist. I am hypopituitary, and never really understood why. Thank you everyone!!!!

One more thought. Maybe we could simply request the title of the document be renamed to “PEM Management Toolkit for Moderate to Mild Patients living with ME/CFS” Seems the best compromise, I can think of, ATM.

Yes me too. From my brief encounter, I deduced he is kind and caring in person too!

Andy is as handsome as his Avatar! His accent is adorable, and is obviously intelligent to boot! Muchas gracias to Dr Montoya, @Andy, and @Ron :emoji_clap: