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Do you mind sharing what you like most about the NHS?

I feel that it’s more about being accepting of each other’s viewpoint, culture, education, experience, and communication style. We can read the same words, on Twitter, and come away with different perceptions as to their intent and meaning.

“NEW YORK (AP) — Five New York City doctors were arrested Friday on charges that they accepted bribes and kickbacks from an Arizona-based pharmaceutical company to prescribe large volumes of a highly addictive painkiller. They pleaded not guilty in Manhattan federal court to an unsealed...

http://www.wheelchairs.com/ Includes All Terrain and High Performance models. (sort of like an “off road” chair and a “sports” chair) :emoji_grinning:

I feel there is no such thing as a squeaky clean perfect person. Jen’s tweets should be viewed in the context of advocating for PwME around the globe. I would assume an international news agency would understand the challenges of what Jen is trying to accomplish. But if they don’t, then that’s...

They are very persistent. I assume, from personal experience, that trying atleast 5 times would be more likely.

Air travel plus adding two weeks of thorough testing is a “big ask” for many of us. I would consider it, if I could avoid the spinal puncture. Additionally, if the NIH wants more volunteers, then they need to think about dropping the age requirements. We are ill in all ages. I have sporadic...

There are many FDA approved drugs. The ones Jen listed, in Twitter, would not help me. If a doctor doesn’t understand any of the mechanics behind his/her patient’s version of ME, along with any defined co-morbid Dx’s, then writing an Rx, off label or not, I feel is risky. If this is the scenario...

https://www.cnbc.com/2018/02/22/medical-errors-third-leading-cause-of-death-in-america.html “The third-leading cause of death in US most doctors don't want you to know about A recent Johns Hopkins study claims more than 250,000 people in the U.S. die every year from medical errors. Other...

Even if I could only look half as good, I wouldn’t mind the colorful hair extensions :emoji_stuck_out_tongue_winking_eye:

Yes. Apparently 2 advocates are better than 1 :emoji_thumbsup: https://www.prohealth.com/library/theres-angel-among-us-linda-tannenbaum-offering-genuine-hope-cfs-patients-45162

@ScottTriGuy

I only know as much as you, which is that Unrest is the first film, but not her last. “Unrest marked her directorial debut, but Brea plans to make more films in the future.” http://deadline.com/2018/01/unrest-jennifer-brea-oscars-documentary-shortlist-interview-1202236562/

It’s almost as if, sweeping ME patients under the rug, is a way to keep them from exposing the truth about PACE. It’s seems to be more of a form of harassment or punishment, to keep them silenced, and it’s even more of a future threat that could be used to remind them, what will happen if they...

It’s still so difficult for me to comprehend this atrocity. It must be expensive for a government to cover the costs of institutionalizing someone? So it doesn’t sound like it’s a decision based upon cost? Isn’t it cheaper to do nothing at all, and let the patient live at home, and offer no...

I feel its better to celebrate Jen Brea’s accomplishments, rather than to focus on the specific company that awarded her the title of “2017 ME/CFS Patient Advocate of the Year”. (Although I feel it should be 2018) I have never ordered from ProHealth, and regarding who they nominate each year...

Here is the NIH page with more details: https://mecfs.ctss.nih.gov/

Thanks for posting. I enjoyed feeling the author’s high energy level as I read her words; she holds nothing back. Ms Salelkar delivers a few good punches, and also clarifies the challenges of what it’s like to live with a disability. If given the opportunity, I would not hesitate to hire her as...

I just checked the California State Medical License Board, to see if there were any updates regarding Dr Eric Gordon. I think we all are already aware of his 3 year probation, in the State of Calfornia: https://search.dca.ca.gov/details/8002/G/82342/8ca7d731335157205e64c5fa0e390c5a...