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Sorry, but I think this knowledge is sorely lacking; we need to change this.

It looks great for Moderate/Mild and Mild PwME. If this was their target audience, then it’s very useful. For Severe it won’t apply. Severe/Moderate it may apply at infrequent times. For Moderate it may apply sometimes. I hope you can see that there is a knowledge gap when it comes to...

I appreciate her honesty and mention about the “high diversity between individuals”. We need more women research scientists studying ME.

I do confess, it was a lot like being one of Cinderella’s sisters who tried to squeeze into the famous glass slipper. But the party is over, so I just took off my shoes. But here is a pic.

Thanks for participating in helping Jen get to the red carpet. Could you please send Jen a note of thanks on Twitter? I would like to see her make more ME documentaries, because there are many more stories to tell.

Let’s thank Jen on Twitter.

Darn it.

:emoji_fingers_crossed::emoji_fingers_crossed: Fingers crossed, legs crossed, arms crossed.... ... hot crossed buns (oh, they are an English pastry) :emoji_grinning:

Welcome to the S4ME Oscar Nomination Party!! Caviar, champagne, and o’dourves are in abundance. We are counting down to the Academy Award Nominations!!! With just a little more than 3 hours to go, I am feeling the buzz of excitement!! The livestream event starts at 5:22 AM PST, with the Best...

I am with you 110%, and feel you are the best person to own and drive this.

Do you have a link for this? It would be very helpful if I could pass this information along.

Thanks for driving this, and letting us know. It is very destructive and annoying that people are publically attacking an award winning film that aims to bring ME awareness to the masses. I will ask more friends to participate in the voting. A few unhinged folks will not stop our worldwide...

It’s a new process this year! I plan to wake up and watch the LiveStream, then post the results here.

Thanks for trying it out, and providing us updates.

Consider the well organized, patient led, ACT UP approach. The AIDS/HIV patients were on the inside (seat at the table with the NIH researchers), while the mass protests happened on the outside. This inside/outside approach, was their model of success. So why bother at all? Because 100-200...

Sure, but only if you post a selfie in your party attire. :emoji_dancers: :emoji_champagne_glass:

“Hope to these Hands: The Reality of ME/CFS” It’s feels like an Unrest(ed) Deja Vu... For more reads... click in the link: https://mecfsjapan.com/2017/10/27/an-outstanding-preview-screening-of-our-me-documentary-film/

Events are listed in Hollywood time (Pacific Standard Time). Here are the details: https://www.oscars.org/news/90th-oscars-nominations-announcement The 90th Academy Awards® nominations in all 24 Oscar® categories will be announced in a two-part, live presentation on Tuesday, January 23, via...