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I picked up on the same bit Trish. What supports the assumption that functional ability can be improved? The overall impression of the guide is quite good, I think, so I guess this is a hangover from the idea that patients can get better with theraputic support. Maybe also from medicine not...

Same here, I guess mine last about a week. I use these ones https://www.amazon.co.uk/gp/aw/d/B004TX1MVU/ref=mp_s_a_1_18_a_it?ie=UTF8&qid=1509148390&sr=8-18&keywords=ear+plugs My local pharmacy sells them cheaper.

I'd love one of these. Would make a massive difference I think. The thing that's helped me most are silicone ear plugs. They really do block almost all noise out and I tried foam ones and so on but silicone has been by far the best for me. They means I sleep much better. No more heart racing...

Well done, they're doing a great job with all the interest Jen's achieved through Unrest.

I do think they should leave but I wouldn't officially petition them to, personally. I'm glad Julia Newton left. It's important to be brave and say no to the bullshit.

As I came down with ME I had a constant sore throats for a couple years, doctors could figure it out. Then I got ME and had it all the time but now it's not sore but still doesn't look healthy. My wife, who I think is coming down with ME has the same constant sore throats thing I had when coming...

Yuk. It reads like a spoof. No one takes this crap seriously do they?

The MEA do good media work in the UK for us. Important task, glad to see it being taken seriously.

Did she give any actual evidence of harassment in her talk? The tribunal certainly didn't see any, they said there was no evidence of any harassment of PACE researchers. Crawley was not a PACE researcher, but despite all these claims I have yet to see any actual proof of these claims.

Interesting as I guess to have gone to the effort to sign this these people must have pretty strong reasons to object to SW. Some of these people are potential allies I guess, or allies already though I do not know most of them. I think SW's response is interesting. He says he supports the...

always pleased to see someone highlight the blatant bias of the SMC

Haven't been up to watching this yet but I rate Dr Nahle, so I imagine this is worth watching.

Good to know David Tuller has remained focused on NICE, and isn't letting off just because they said they're going to review the CFS/ME guidelines. It's essential that the community maintains pressure on NICE to keep them honest and ensure the best outcome. We can't leave it to the powers that...