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Astonishing accusations to make.

"Where's 'e at" is the one I've heard. Never knew quite how to interpret that one though. Is it, "Where is he" or a observation about a person's head covering?

The second part - that there is immune dysfunction - certainly isn't proven by the result but I think there is enough evidence of that outside this study.

I didn't really have words when I saw this news just reactions I can't actually play out in real life. The dinosaur riding a horse kicking a large football one at the end was just a bit of a "WTF, is this real life?" ending. Also it makes me chuckle. Spoilered below is a fuller video on youtube...

Bad is my guess. I'd like to be wrong but it was only last year that they were lending their strong support in court to try and keep the PACE data hidden from the public so that the bad research would be covered up, even though their official policies supported the data's release and they had...

All the time when I'm hammered. :laugh: In seriousness, I can't drink because of the ME but I do have balance problems. I can be walking normally and then suddenly lose my balance and go sideways into the wall or whatever, seems to happen randomly, sometimes I can walk pretty normally, other...

Agree that the pathophysiology isn't needed to make something useful either as a diagnostic or a treatment, but the issue here is that Perrin is making claims about pathophysiology without prior proof to back them up while selling the treatment privately. Not sure if anyone is selling Rituximab...

Leaving aside the issues around unproven claims being promoted about the treatment, this study created a hamstrung diagnostic method to compare against which had the effect of making the Perrin technique look better than it was. If we compare against the actual standard NHS diagnostic practice...

No worries, yeah it looks to me like he's just promoting his technique but the findings don't justify it. I find his other comment in the media even more concerning though, the one about treatment, because that isn't even what this study is looking at. This is serious because patients have to...

He has, in the media coverage:

Having read the whole thing I don't think this is methodologically as bad as SMILE, but that's not huge praise because it still falls short in so many areas. I think some attempt has been made to try and avoid certain shortcomings but too many remain. It's not ethically as bad as SMILE either...

Thanks, I even read that bit but missed it! Too many toxins floating around :p If this person has worked in an ME/CFS clinic it would seem unlikely to me that they had any actual experience or qualifications in either rhematology or neurology. The paper doesn't say they have.

According to the study the experienced AHP has worked with ME/CFS before. The inexperienced has not. I can't see that it says if the clinician has or hasn't. The clinician did have experience too. The problem is that the clinician is being asked to do something unusual to their likely...

ok so "allied health professional" is a thing. Thanks, got it.

I've had both sets of these tests done on me for other reasons since I've been diagnosed with ME. Both sets of tests were found to be normal. This methodology virtually guarantees that the physician is going to diagnose less ME than they would under more typical diagnostic methods (symptoms...

Thanks for posting John. I agree that physical examinations like this could potentially have some use. The two issues I have boil down to 1. the potential of the treatment being promoted off the back of a study that doesn't even look at the treatment itself, only it's diagnostic utility and 2...

I've only read the abstract but here are some thoughts, some of which others have probably made already. Seems odd to recruit from CFS/ME support groups to me. I expect this impacts the suitability of the study, not sure, maybe someone can enlighten me. The study is biased because patients...

Initially for many years it was Primary-progressive (gradually worsening with no relapsing-remitting pattern) and I didn't think any leveling off was possible, but I did have a period of time for about a year where it did seem to level off and not get worse, which was a surprise to me.

I won a PIP appeal myself this year. The DWP's case was complete rubbish and overturned almost every bit they looked at. Basically, as the citizens advice person says they completely disregard all evidence from other medical practitioners, even if they are much more senior than the assessor, and...