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  1. Mithriel

    Diagnostic accuracy of clinical signs and symptoms for psychogenic nonepileptic attacks versus epileptic seizures..., 2021, Gilmour et al

    Thinking about it, "female" and "sexual abuse" are not specific enough to use for a diagnosis. There is no path offered by which being female can cause a seizure. It harks back to women having weaker brains and constitutions and is no more medical than that. Then "a history of sexual abuse"...
  2. Mithriel

    Diagnostic accuracy of clinical signs and symptoms for psychogenic nonepileptic attacks versus epileptic seizures..., 2021, Gilmour et al

    If it was as simple as "not caused by abnormal electrical cortical activity" surely there would be no need for any other criteria? Being female and having been sexually abused could be the best indicators because people in those categories are more likely to be diagnosed with it. Pooling lots...
  3. Mithriel

    UK: Observer/Guardian article: "GPs stricken by long Covid ‘shocked and betrayed’ at being forced from jobs"

    Fairness, where no one gets more than their share, seems to be written into primate DNA. Because we also have a sense of compassion people who are seen as being unable to contribute are still allowed a share from the communal pot. However, we are depicted as being able to do things if we wanted...
  4. Mithriel

    Cambridgeshire Live article: Cambridge Dad living with ME becomes so exhausted he can't walk downstairs

    I don't really experience fatigue even now, it is feeling ill that keeps my from doing things. What I have always had is a sudden stop, either my whole body or parts of it, which can take a few seconds to hours to recover to what I was doing except very occasionally. This is different from the...
  5. Mithriel

    UK: Observer/Guardian article: "GPs stricken by long Covid ‘shocked and betrayed’ at being forced from jobs"

    Before CFS, doctors and medical staff were seen as being liable to get ME, (along with mothers and teachers) as they were often in contact with infectious diseases and found it hard to take enough time to recover when ill. Charles Shepherd and Vance Spence one of the founders of MEReasearch UK...
  6. Mithriel

    Covid-19 vaccination experiences

    I discovered recently that there is a name for this. I had just assumed it was something everyone experienced most of the time https://www.healthline.com/health/sleep/sleep-drunkenness Awful name. It is also called confusional arousal
  7. Mithriel

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    When certain organs are attacked it can become life threatening very quickly but other organs can be badly damaged but you can keep going. Consider a bladder infection as opposed to a lung infection. Not being hospitalized does not mean that the infection was milder or did not cause widespread...
  8. Mithriel

    An interesting article about sleep

    Sleep is highly conserved in evolution so something about it is necessary to the function of the organism. As organisms have become more complex so have the functions of sleep. Psychological dominance of sleep and dreams may have hidden the fundamental, biological necessity of sleep. These...
  9. Mithriel

    Covid-19 vaccines and vaccinations

    It is 3 weeks since my second jab. I don't get out much but I had to go for a blood test so I took the opportunity to go shopping. It was about 11.00 o'clock in the morning so everything was quiet. I visited 2 shops and got some hand cream and 6 t shirts for warm days so I was pleased. The...
  10. Mithriel

    The Effect of Literacy-Adapted Psychosocial Treatments on Biomedical and Biopsychosocial Pain Conceptualization, 2021, Morais et al

    And if they say they are in bad pain decide it is because they think it is physical so the answer is to find ways to make them believe it is not physical because we firmly believe that will make the pain magically go away. If the pain does not go away that will be proof we are right because...
  11. Mithriel

    UK: Medicinal cannabis on prescription

    The MS research I know about was at least 2014. I am not good with time, but one of my friends who had to withdraw because of side effects died a good few years ago.
  12. Mithriel

    UK: Medicinal cannabis on prescription

    They ran trials of cannabis for MS in my area but the results were not fantastic. In the real life situation, there was a lot about cannabis for MS twenty years ago and many of the people I knew had tried it and the chocolate bars but if it had worked that well everybody would be taking it now...
  13. Mithriel

    The effectiveness of inpatient consultation-liaison psychiatry service models: A systematic review of randomized trials, 2021, Toynbee, Sharpe et al

    There must be a reason for doing this now. Maybe they want the approach discredited so that their CBT looks better or to get more money... whatever. You can be sure patient care is not the priority.
  14. Mithriel

    Clinical Validity of the PROMIS® Fatigue Item Bank across Diverse Clinical Samples, 2016, Cella et al

    I am interested in seeing the forms but I can't find any place to download the pdf.
  15. Mithriel

    Gastric Mucosal Immune Profiling and Dysregulation in Idiopathic Gastroparesis, 2021, Gottfried-Blackmore et al

    Are these researchers saying it is functional to mean MUS or emotionally based or do they mean something else. It is so confusing. If there are physical changes it can't be FND by definition and if it is caused by immune changes it is not idiopathic but immunological surely. Gastroparesis can...
  16. Mithriel

    Trudie Chalder, BPS and MUS proponent - presentations, interviews and news

    Yes, it is not just that their treatments don't work, they have absolutely no idea of what they are trying to treat.
  17. Mithriel

    Canada - Unknown brain disease in New Brunswick

    I have always had it as a symptom long before I was severe and before any medication. It may not be best described as a trembling as it is totally internal, a whooshing inside is a better description. I also get a spasm inside which feels exactly like a baby kicking and in people who are thin...
  18. Mithriel

    Canada - Unknown brain disease in New Brunswick

    A trembling, thrumming inside is one of the ME symptoms. A good few years ago now on another forum I discussed this with another patient. She had a very good, well understanding, doctor and he said that what she was feeling was a turbulence in the arterial blood flow. It seemed to fit what I...
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