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Was there not a Cochrane group that looked at the rules for bias which included a BPS guy who got the rules relaxed so that PACE could be considered low risk of bias?

The patients who were involved in the trial were preselected by the people running the trial much the same way it was to be done in the LP trial that did not pass ethical review. What criteria they used to decide who was eligible to enter the trial has never been published. It was implied that...

Possibly, the ones who stayed in Britain would still have trained with live ammunition. Now I think about it, why would soldiers who stayed in the UK be suffering psychologically anyway? For every psychological theory I can think of a physical explanation and for every physical illness I can...

Fatigue was not the main symptom of ME, that was an abnormal response to exercise. When the CDC considered the Lake Tahoe outbreak they thought it was epidemic EBV so they called in the expert on that Stephen Strauss. Prolonged EBV disease was defined as a positive EBV test then 6 months of...

The most interesting parallel with shellshock is that it was considered psychological for years but with today's technology we know that bombardment causes microtears in the brain. The US army is developing helmets that are protective while during the first world war the men had bits of shaped...

In the days before CFS, ME was considered a disease where there was an abnormal reaction to exercise which is close to the Workwell findings of damaged cellular respiration. Fatigue took a backseat. Malaise was also considered a symptom. I was doing a university microbiology degree in the 70s...

I started to take it and thought I felt a bit better but then I went for the weekend to see my son and his family. Three young kids so it was always a challenge but that weekend I felt dreadful with my ME way worse than usual. When we got home we found the Q10 sitting on the bed where my...

I think people resent that they feel fatigue but still do things, like getting out of bed on a winter's morning to go to work while some people say it makes them feel too bad and won't do it. Parents of young children are often fatigued but still have to feed them and look after them even...

We have to remember that the beauty of the CPET test is that it is a standard diagnostic test used routinely all over the world. This is not like some of the other testing proposed in ME papers. The test is administered just once to give a reading that doctors have been taught to interpret...

This is worrying because it show the way that ME = CFS = chronic fatigue is used to dismiss all the biomedical problems we have. This has been the continual goal of the BPS. Fatigue is acceptable as something to be treated by CBT and GET. Most people have felt fatigue and overcome it by forcing...

On other forums, I have come across stories of people who were bedridden then became well and are now very athletic. Most, if not all of them had been ill with EBV. I believe it is possible to be seriously ill with EBV but not develop ME, then the EBV resolves after a few years. Giardia is...

I think this is a report of the same research on the BBC news https://www.bbc.co.uk/news/health-57431412 Some interesting bits more worryingly We undergo that sort of strenuous exercise getting a drink of water. We may not have the genetics for the neurones to die but this shows that...

I could be seen as perfectionist. I like my house to be tidy and my drawers are very neat, But this is because of my ME. I get bouts of blindness so the floor needs to be clear and everything in it's place so I can get about without injury. My drawers are tidy because it takes much less energy...

Every statement in the conclusion has a may or a might. Hardly compelling.

Enteroviruses are known to cause diseases of the brain and heart as well as hand foot and mouth disease and summer flu. They also have mechanisms for evading the immune system. They are a seriously neglected class with the CDC taking far too long to be forced to admit that acute flaccid...

I think they just updated the McEvedy mass hysteria from 1970 to illness behaviour, so dropped hysteria which was going out of favour for a more "scientific" illness behaviour model.

The main reason to believe that ME comes after infection is that people get it during outbreaks. Syphilis lives in the body forever causes different symptoms at different stages until you get General Paralysis of the Insane after years. There have been autopsies done where VP1, an...

I got the BCG after I had ME. Did not help, obviously :)

We could do with a care button like they put on facebook. How dreadful for both of you.

Nothing, no type of evidence, demonstration of error in any part of the process of research, patient experience, expert testimony, committee reports, judicial judgements, anything you can think of has changed the minds of the BPS people. They respond to everything by making statements which are...