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I know lots of people who are deconditioned in the sense that they do not exercise much and know it and they are all aware they should exercise more and do not attribute it to organ dysfunction. Similarly, the sort of people I know who are active without being athletic don't have much trouble...

Interesting that the systems work differently. It shows that inferring how something works is not always correct. A lot of the somatisation theories are because thet say the results are "incongruent" with known disease but this shows that biology is not straightforward.

People who have been monitoring their heart rate for a few years have noticed that their heart rate increases due to POTS and due to over exertion, but there are times when it drops or does not rise when they feel particularly bad. It may be that at those times there is not enough free energy...

ME is so variable that it is impossible to predict any one individuals response to any vaccine on any given day. Research may give us some idea of what is going on in our bodies but basic biology is more important for predicting how a vaccine might work than spending money on vaccine research...

That will change with prolonged exposure to the sort of statements and research poured out by the BPS :) A picture is worth a thousand words!

That is changing. People are being convinced by the facts like our own Dave Tuller and Jonathan Edwards. Hughes

Typically, I have lost the reference to it, but I remember reading a questionnaire that was used to measure childhood trauma. Using a questionnaire rather than a discussion with the patient could be leading to all sorts of problems the same way anxiety and depression are over diagnosed by using...

Never sure about this sort of research but we instinctively stroke and hug people in distress. Babies stop crying when they are held so there must be a feedback from the skin to the sympathetic nervous system. Rocking is also soothing so I do not know why they did not include that in the study.

The difficulties involved in living with chronic illness makes people seem to get tired more easily because of the extra effort needed to do anything. Healthy people think of going on a night out as more difficult than usual because it is for them too. What they do not appreciate is that every...

I think that the word brain fog has been reduced and trivialised until it is what most people get, like fatigue becoming tiredness. The cognitive difficulties I have had since I was young are closer to dementia with things like wandering the town not able to work out how to get home. Very few...

It hurt me so much that doctors will only believe the sort of life I have endured when they feel like that themselves and people complain about being unable to live a normal life for a few months. Where were they all when we were trying to get anyone to notice us? I think my hurt is because I...

Then every person using it assumes it is a properly validate informative set of questions which give a properly validated informative answer. The fact that it needs interpreted for patients - what do they mean by "usual" is that last week, before I was diagnosed, before I was ill, or just how I...

Being found with a block of soap in your mouth or the thermometer in the coffee is the only level of evidence that proves factitious disease. The preponderance of females is just as likely a reflection of misogyny in the medical profession especially as the diagnosis is inferred rather than...

If a biological test is found they will just say that those people were misdiagnosed with CFS and carry on treating people who feel fatigued but had a negative test. That 49% of people who are misdiagnosed at the clinics won't have a positive test for ME and will still be there and the ones with...

Julia Newton has done some good biomedical research. Her studies looking at muscle cells and white blood cells (I think those were the cells!) in vitro showed problems with cellular metabolism. She went to Newcastle when John Richardson still ran the Newcastle Group. He was one of the last polio...

The stunning part of this update is that they are trying to disprove the theory. So much research into ME has just been dropped and either forgotten or people say it did not work out when it was just that the miniscule funding ran out, no funds were made available for large scale trials, the...

I am not sure of the biology, but are things like hypocapnia causing effects or are a consequence of low oxygen availability in the cell? That would be equivalent to the aerobic system not working properly so the symptoms would be similar in ME to what is found with these things.

The vaccine itself can only make the immune system believe it has been infected with covid. The energy involved in that can push over a system that is barely managing and if the immune system is broken it can react unpredictably. It is a trigger to other effects. However if the system is that...

The speed of the vaccine development was more to do with speeding up the usual delay caused by oversight committees meeting once every 3 months, that sort of thing. The science bits were done the same way as usual and the vast number of people who have had the vaccine without a problem shows...

There has been a push to educate hospital staff about the problems autistic people have accessing medical care. One example given was a teenager being examined by 2 doctors who asked him if he heard voices. When he said he did they began the process of getting him admitted to a psychiatric ward...