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I think this ranks alongside Rod Liddle. If they were pro ME I would begin to wonder if we had been wrong all along!

A few things spring to mind. Motor FND may be all one disease or it could be that symptoms (including depression and anxiety) are very similar across all motor disabilities. They did not have a control group of MS patients or Parkinson patients with a similar level of disability. indicates that...

Firstly, I think that factious disorder probably does exist as a mental disease, maybe a compulsion like OCD but I do not think we can trust psychologists not to diagnose it too easily or badly intentioned people to exploit it for personal gain. A few years ago now but a report found that...

We all have our theories of what is happening in ME, what helps what doesn't, but as Alex says it has to be checked against evidence. This sort of forum is often seen as a little bubble of people reinforcing each others prejudices but I like to feel that we keep checking against evidence. I...

They seem to be trying to show that doctors are the only ones with true expertise and it should be the way things are but it is not. Too often they become too sure of themselves. A friend went to the doctor's because she suspected she had coeliac disease but was told categorically that only...

This is a very strange statement. Outbreaks and epidemics are caused by contagious organisms. It would need a lot of well produced evidence to show that some are caused by a geographically localized combination of factors superimposed on a common genetic predisposition. It may happen like that...

That has nothing to do with psychology. Specialist nurses or even training patients to sit and chat with the newly diagnosed would do just as well. It says nothing about the IAPT service though I can see it would be more pleasant than actually working with mental health problems.

These studies done with very low numbers of patients who are selected by the fukuda definition are dangerous to the community. Over the years there have been many of this sort of studies done. They were criticised at the time and all the limitations of small sample numbers and insecure disease...

The other important thing about the vaccines is that delta has not gone away so being immune to that is still important. NHS Grampian says it is as if they are dealing with 2 different pandemics now.

There is a problem with energy production in ME. The basic biology of mitochondria and the details of energy production have not been discovered so the every step forward gives hope that the mechanisms of ME can be found.

This sort of basic biochemistry may be what is needed to finally make some progress into finding what goes wrong in ME.

Yes, I've noticed that a lot of FND language insists symptoms are involuntary but talk as if they are choices, though often by the "brain" rather than the person - so much for saying it is us who insist on cartesian dualism! Not only are they invoking Freudian hysteria but also the Freudian...

Very interesting. Low cellular energy may be fundamental in ME so the sleep problems we experience would be connected too.

The number of deaths as a result of omicron will no be solely down to the severity or otherwise of the virus. It is so infectious that medical staff are becoming sick so they are simply not there to treat patients. Then there is the sheer number of people infected. If only a small percentage of...

The criteria for FM have been loosened over the years until it means "widespread pain" to many doctors. You see it used as a symptom nowadays alongside CFS used to mean fatigue that is chronic. With the confusion we know exists about what ME actually is I do not see how a doctor can distinguish...

The more I read the more I believe this is a big issue for us. I recently saw a picture of a leaflet with guidance from the CDC which said PEM is when you get an increase in symptoms from exertion that previously did not cause a problem. Since the CDC invented the term that may be what they...

From the statements made by the colleges and the PACE trial manuals and so on it is obvious that the BPS believe that exercise will cause harms but that those harms are just the natural response as the body becomes fitter so their is agreement that patients will feel worse. The "experts" assume...

Looking over the thread, comments about people with psychosomatic disease being more likely to attribute symptoms to physical rather than psychological causes reminded me of a research study in the early days of BPDS involvement which made me understand exactly what type of people were now...

I am fairly severe though I can get out of bed and lie in a recliner chair for much of the day and I have never had any problems with the covid jabs, flu or anti shingles. I am on a forum for the severe and very severe and there is no pattern. Other threads have mentioned needing repeat...

If they had not searched for an underlying cause for type 1 diabetes everyone with the disease would have died. Not only that, it lead to an understanding of all hormone diseases so people with thyroid diseases, Addison's disease and so on would still have a shortened life span as well. Who...