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They are reviewed by people who belong to the same "cult" of biopsychosocial disease who publish studies of a similar standard. Editors also ignore negative comments from reviewers. One paper was allowed to stand even when it was shown to break the journals own rules on publication. The rules...

Charles Shepherd was interested into a link between hep B vaccination and ME at one point but I don't know if anything was published.

They use "generalized anxiety disorder" as if it was a final diagnosis. The FND people do this all the time as well with their statements. The problem is that it is a description which indicates where they should look at what is going wrong, not just done, dusted and categorised. If you decide...

I was part of the study. There was no way to influence the results so the technician explained what they were doing and my results to me. I had acetylcholine dripped onto my arm which dilated the blood vessels, then they used a doppler machine to measure how quickly the vessels went back to...

I would be more impressed by the work being done on EBV if they hadn't been looking at it for the last 30 years yet getting nowhere. I'd love to be wrong.

He is making a false comparison. It is not prejudice against the unvaccinated it is anger that they could have avoided being so sick. Comparing that to the way people with ME have been treated and the disabled and people of colour is disgusting. People are dying because resources are being used...

I can't understand why psychologists keep insisting that subjective results are the only important ones because it is how the patient feels that matters. (They also say objective results are hard to measure which is also ludicrous but that is another story.) Phobias about things which are not...

I scored 46! It is ludicrous to use a scale like that for physical disorders, not just ME but every physical disorder. It seems strange to me that it can be used for a mental disorder either. Social anxiety can easily score 20 or more.

I think "most cases" is going a bit far. They thought the Incline Village outbreak was EBV until they found that many patients were negative and EBV was not implicated in the ME outbreaks. Every virus has a fingerprint of how it spreads and they did not match that of EBV.

What do they mean by avoidant behaviour? This sounds as if they are still assuming that not exercising is due to a phobia instead of behaviour that leads to better health day to day.

Hypothalamic–pituitary–adrenocortical axis dysfunction was thought to be part of ME before CFS. The past is littered with papers like this; suggestive findings which were never followed up to be confirmed or discarded, simply ignored because they do not fit with deconditioning and kinesophobia.

A while ago now, there was a paper done on CFS which involved healthy people having brains scans while imagining being fatigued. Or something like that. It was so jargon laden it was difficult to understand except that imagining you had something like a patient said they experienced was meant to...

It is always useful to know how a healthy body works but I hope they bear in mind that we do not know exactly where the biological deficits in ME lie. A patient with ME may do exceptionally well with light exercise because our bodies have made adjustments, like adaptations to low level oxygen...

Not suggesting anything, just mentioning MKUltra, a CIA operation part of which involved leaving LSD laced sweets and biscuits in their break rooms.

One way populations achieve equilibrium with a virus is because all the susceptible people die off. The Spanish flu killed so many people with TB there were never such high rates in the population in the UK again. Other epidemics came in waves and repeatedly killed people off so the genes...

While patients with longcovid (and those of us with ME) are desperate for a treatment it would be best to do intensive research into the biology of what is happening. Once the deficits are identified we will be much closer to working out what will help. Longcovid and ME are likely to be more...

With working in a hospital my husband was vaccinated for flu for years. One year he became ill the evening after the injection with a flu like illness. It has never happened in the years since. He was obviously already going down with something when he got the injection. I may be mistaken, but...

I am not feeling up to checking exact dates so it went roughly like this. There were always epidemics of what was referred to as atypical polio which were probably caused by another enterovirus. The Royal Free epidemic was classed as one of these. The doctors involved saw it as a proper disease...

Exactly. The unspoken arrogance is breathtaking. Patients know what they are thinking and feeling while the doctors are just believing what they have been told. It could rightly be said that they understand biology and anatomy better than the patient but it is conspicuous that these beliefs are...

This raises lots of red flags for me. Wessely makes a big thing of people with ME misinterpreting normal bodily reactions as ill health so people with ME are the opposite of those heroic patients with genuine disease who ignore the real pain they get and contribute to society. Whiners all. I...