ME was defined as an adverse reaction to exercise and exertion, it was CFS that made it a disease of fatigue. Fatigue in ME was always like fatigue in MS, a difficult symptom but not the defining one.
The BPS people included everyone who experienced fatigue and lumped them together. They...
It does not explain serious illness caused by organ damage but a lot of what we see as illness is the immune system's response to the infection. Interferons cause fever, runny nose and coughs, malaise and so on.
A mild disease could be because the immune system fights of the invader quickly...
Over the course of my illness the British diet and the availability of foodstuffs has changed dramatically but it has had no effect on how I have been. In fact I am much worse now, though that is probably due to age and the consequences of serious disease rather than diet.
I ate more vegetables...
They have already found biological reasons for FND. I don't understand the technicalities enough to know if these anomalies are real or the result of bad science but they claim that they have now found the biological basis for FND so have brought hysteria from a theory into the light of modern...
Brain plasticity is the ability the brain has to reuse some of its neurons to do a different task if it is needed. After a stroke the neurons which manage speech, say, are destroyed but over time other neurons are repurposed and speech can be regained.
In a more general sense, the brain is...
Worrying. They thought people with asthma would be at high risk of serious disease but found this was not the case. Shame if they are at high risk of longcovid.
Lyme disease is a disease in its own right. The only association with ME is because both are written off as MUPS or imaginary. The state of the microbiology tests into Lyme is awful and a clear example of what happens when some people are given too much authority without the expertise to back...
It is quackery and pseudoscience and it is dangerous you are completely correct.
Classic and severe presentations of neurological diseases are probably being diagnosed but there are problems. One paper I read complained that too many cases of myotonic dystrophy were being missed. Since it is...
There is a place for looking at romantic and sexual aspects of ME but doing so from the point of view of the stress involved is a bit skewed. Have a close partner can cause stress but it also takes away stress. Being single because you are so sick is stressful but then it is less stressful than...
I may be wrong, but it looks like there was a subcategory of the Oxford Criteria which allowed that some people felt they had an infection before they became fatigued. Forgotten who it was, sorry, but someone said it was probably because the people who were researching ME and saw it was often...
First thoughts are that use of a questionnaire is valid. It mimics the questions a doctor would ask to reach a diagnosis and is a valuable concept.
Having said that, very few are fit for purpose, especially the ones used for ME and for mental health in general. A doctor will see you in context...
My daughter was doing her nursing training in an orthopaedic clinic.
One thirtyish woman had fallen and been x rayed but nothing could be seen. She was told everything was fine, probably just strain from her fall.
She phoned the next day and said the pain as worse but was reassured but two...
Yes it is actually very complex I was just trying to get across the point that there could be valuable, useful research to be done by breaking down "worry" which is like saying someone is ill, true but not much useful information.
I wish they would examine the biological underpinnings of why...
It is revealing that the papers on FND have followed a pattern, dare one say strategy on how to manufacture a disease.
It was presented in 2008 with lots of caveats which were dropped somewhere along the way. Then there was a flood of papers on ways to make the diagnosis palatable to patients...
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