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In the late 80s Wessely and the others of his ilk chose to move from ME with its main symptom being an abnormal response to exercise to CFS by considering fatigue as the main (if not only!) symptom worthy of recognition and assuming that all fatigue is a single continuum of disease. Was this...

When they look at risk groups for ME one is aged about 12 - 15 and another around menopause. This has been said to be due to hormone influence. I was 14. Young children and babies may not be able to communicate vocally but a sick child is obvious. Until about 6 or 7 they bounce about like...

A moment's silence is probably the only valid response. Mourning the dead to come.

What are "emerging adults " as in "Persistent somatic symptom distress is common in emerging adults"?

I have said before that the idea that there can be no objective measure of subjective symptoms is wrong. If the patient says they are so fatigued they cannot do gardening any more, a diary of how many times they can weed the borders before and after the treatment is an objective measure. If you...

They renamed and redefined ME so the symptoms of ME now correspond to no known disease. They will never be medically explained if they continue - without giving a reason - to deny the medical explanation.

I have being going to hyperbaric oxygen for years. It is not a cure for ME but it gives the same lift as a day at the seaside, if you know what I mean. The clearest result is that I sleep much better after a session. However, the clearest results are from wound healing. We have people with...

I don't know if it is UK wide but here in Scotland the government is giving free social distancing lanyards to everyone who wants one.

Yet the only thing patients are interested in is an increase in objective activity. Fatigue is only a problem when it stops you doing things. The two things are intertwined. All the other things we wish would stop they just ignore so we do not know what effect there is on pain or vison or...

I have come to believe that these papers all work the same way. They are written in a difficult to understand language where the numbers are made to seem impressive as they jump out at you. "200 people were in the patient group and 90% of those who completed the course were very much better"...

It is a disgrace the way they have spoken about you and your evidence. When they attack someone with your credentials and no career to lose it gives an insight into what they are doing to researchers who are new to the field. We have always known that they are the ones driving good scientists...

Even now, I feel what I call ME-ish. Part of that feeling is that I need to go for a long walk to get my body going again, some fresh air and stretching. Bitter experience tells me it wouldn't work. Listening to what our bodies need only works if they are not damaged.

I do not doubt that many people with longcovid could easily be diagnosed as having FND but not because of their symptoms but because FND doctors believe that all symptoms are part of FND. Their "opt-in" tests are a bit dodgy but the biggest problem is that they may be detecting something but...

I would have thought they were warranted to reduce PTSD symptoms and pain!

It may be new in medicine but this sort of tensing is used by fighter pilots to reduce the chance of fainting during high g's. After I watched a documentary about it I tried tensing my leg muscles if I had to stand and it does help a bit.

This would follow from the CPET studies which show we have to dependent on anaerobic, inefficient respiration for much of our energy needs. If there is not enough ATP available the body prioritises the heart brain and liver so less will be given to muscles. Low blood sugar in diabetics causes...

His insights into heart problems were very important as he was following up work on diastolic heart failure done by the cardiologist Peckerman at the NIH. Natelson carried on with this at the NIH when Peckerman retired and the feeling was he was finding interesting things then suddenly it...

Epsom salts pulls all the liquid from your body and excretes it so it gets rid of the milk fluid. It worked :) Families used to have tins of epsom salts in the cupboard when I was small but we were posh and had Andrew's liver salts. My cousin and I loved it and would sneak into my gran's larder...

I was forced to stop breastfeeding and it was very painful. The midwife told me to take a large dose of epsom salts. Let's just say it worked in more ways than one and it tasted absolutely disgusting!

Years ago the ME Association did a study on Mg supplements which gave a positive result. The newspaper headlines were "ME patients told to take epsom salts"