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I like the way PEM is being brought to the foreground but that has its own problems. It is not just that we feel bad after exercise, that happens with most chronic illness. The delay is unusual but not unique. The way we get immune problems after exercise is not usual at all but it may not be...

Unrefreshing sleep is so trivial compared to the problems we have. The constant insomnia, vivid dreams, pain, spasms, inability to bear the weight of the bedcovers, night sweats, headaches, air hunger, dry eyes, tinnitus, all reduced to "unrefreshing" I dread night times.

I never told a doctor I had fatigue. I said I felt ill and fluey or had a complete collapse. After CFS was invented patients began to talk about experiencing fatigue but they often meant what I had experienced. Doctors were calling that fatigue. I suspect the difference between countries is...

The negative result could have been useful if it had been left at that but he then went far out of his area of expertise by assuming a psychological or behavioural cause with no thought to what the consequences would be. The arrogance choked me at the time. This paper was used as strong...

I had a horrendous time in a neurology ward. It was when I was still naive and thought I was there so they could see how bad I was, not get exercise therapy and a psychologist who kept asking why I did not go to work (!!!). No one was interested in what I felt were my symptoms and what made me...

Doctors are too willing to use a blood test as a yes or no answer but at least they are usually accurate, it is only edge cases where there is a problem. Questionnaires, though, are given the same status when they are much less accurate because there is a strong risk of bias. They have to be...

I don't think she realises about MUS and FND which is frank about being a scientific justification for the concept of hysteria. I can see someone coming to this thinking it is a dismissal of the patient to fob everything off as anxiety but the truth is that doctors are told there is good...

Intensive physiotherapy may well help people with movement disorders especially if they are caused by a single event such as a bang on the head. It would work the same way as stroke rehabilitation. There have been some videos going round of this. But that does not prove it was ever a functional...

They make a big thing nowadays that physical or emotional trauma need not be present to diagnose any "phenotype" of FND. Then we have How can diseases be called functional because there are no structural abnormalities then show structural abnormalities. Do these people ever read what they...

I've reread this thread and just wanted to say something about this. When I was diagnosed with type 2 diabetes I kept to a very strict diet and took medication from the start. My blood sugar became lower, but it fluctuated wildly. It turns out that your blood sugar rises when you are ill so the...

A problem with surveys is that people who have a problem are much more likely to say. (It is the same with Amazon reviews!) Even here, the thread on the effects of vaccines is heavily weighted towards those who have had problems. Ones who were fine may post once to say that but the others post...

My own belief is that the introduction of student loans was a backward step. In the heady days of grants 3 of my classmates from poor working class areas went on to be well loved GPs. Many of their fellow students were similarly from poor areas, first in their family to go into higher education...

I may be repeating myself on this thread but it is something we need to bear in mind. The confirmation bias in ME research is awful particularly in FND papers which have been like that from the start, and remember that Michael Sharpe was co-author with Jon Stone on that paper in 2008. However...

I have been reading a few proper science books that have been sold for Kindle at 99p. They give the scientific reasons why structured sleep is necessary for good health and why exercise is good for you. It is proper evidence based science and more and more is being discovered about it all the...

PEM is often misunderstood to mean an increase of symptoms after exercise rather than the symptom in ME where there may be a similar immediate effect of exercise but the symptoms evoked are different from normal ones, last an extended length of time and may be delayed for up to 3 days before...

Thank you. I have bad movement problems so the risk of FND is high! That is one of the worst bits of research and makes a farce of the whole thing. You can sound as scientific as you like but if does not help patients it is not medicine.

I think it means that the patient will get worse in that time as it becomes obvious it is cancer but they were never the best at explaining themselves. My father became very fatigued when he first developed cancer but his first blood test showed very low levels of iron which accounted for it...

I have never forgot a book I read which said that human beings seemed to be programmed for pity. Once someone claims to be a victim all logical reasoning flies out the window. Saying you don't believe them is then seen as an attack and makes people defend them even more. Calling us terrorists...

Can anyone remember the name of the study of functional epilepsy that found attending a clinic for CBT did not reduce the number of seizures? I meant to copy it as it is proof against FND if I get faced with it.

"Previously known as Chronic Fatigue Syndrome" I know it is trivial but CFS was ME first!!!!