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Healthy people after bedrest are not comparable to people with ME. We are not deconditioned and even people in the community who are healthy but deconditioned can't be compared to people who are horizontal for 10 days. I have a feeling this will be used to show that people with ME and longcovid...

Genetic mitochondrial disease will be different from acquired disease. A genetic defect will affect all cells so the damage will be severe but acquired disease will not affect every cell in the same way psoriasis does not usually affect every inch of skin or MS destroy every piece of myelin...

In the days of ME a disproportionate number of sufferers were teachers, health care workers, and women with young children. It was thought that these were all people who often interacted with those who had infections and who found it difficult to rest adequately when they themselves had an...

Let's face it, sleep is a dynamic process not rest so it is not wonder our ME bodies can't do it properly. Maybe in the early days the body is trying to fix viral damage in the brain by having lots of sleep but eventually there is not enough energy produced so it can't be sustained. We do not...

From memory, sleep is initiated by a complex interaction between 3 systems. There is one involving melatonin which is set by sunlight in the morning. This is connected to the circadian rhythm which works best if there is a routine to life with set times for getting up and meals. Then adenosine...

This is a very important subject. Mental health treatment is denied to people with ME because either we dare not go to a practitioner or, if we do, they decide that "sorting" our psychosocial problems is the way forward. As with our physical problems no one in health care is interested in what...

The 041 adenovirus they have found in some of the children usually causes gastroenteritis. If children are meeting it later in life because of pandemic behaviours you would expect it to cause a more severe stomach disease not attack the liver. If it has changed behaviour and is now causing a...

It is a meaningless sound bite that looks profound at first sight then a second look tells you how stupid it is. There is nothing bizarre about it. Every disease is something that is different from the norm for the healthy population That could be the very definition of disease. Children are...

I find it difficult to understand these abstracts so I may be missing something. The children were already diagnosed as having functional seizures yet they say it was a "prospectively matched-control study design". I thought that prospective studies were ones that looked at everyone with, say...

I worked out ways to make cooking easy when I was moderate with kids at home and cooking for 8 of us at times! I have used a series of halogen ovens over the years. They are a wonderful cooking system. Air fryers seem to be a new thing that is similar but I tried one and did not find it as...

I hadn't considered it but my temperature control is very bad. Right from when I was first ill if I am too hot I have great difficulty cooling down and if I am cold I need an outside source to heat up. In the days when I could still get out shopping my FiL would pick us up from the town centre...

My OT became bad during very hot weather. I thought it had become permanent but it got better during the winter. The next summer I took steps to stay as cool as possible and it has never been completely disabling since.

I enjoyed the blog it is such an important subject. Creative pursuits have helped me cope with ME. It gives me confidence when I go back to an old project and think it is good but most of all, I plan things in the long hours when sleep won't come.:) Years ago, when I first started using a...

I don't understand the implications of this but my symptoms are strongly neurological so it interests me very much.

I tried to find the Trier scale but only managed to see a short sample of the questions but a lot of them were of the sort we are used to where physical symptoms confound the answers. Things like describe the physical aspects of ME while are caused by ME not ME caused by them. That is 4...

Andy, you do well to bring these articles to our attention, I just can't bring myself to press like. What sort of prognosis can there be apart from possible resolution of symptoms? There is a flood of papers about FND and the most consistent thing about them is the use of words like...

Exactly. If their results are accurate (Who would have thought science would have come to that?) they have shown that functional gastric disorders are a misdiagnosis of a chronic gut infection not that an infection is associated with it :banghead:

I kepp repeating myself but then so do the researchers! OT and sensory modulation are valid treatments without invoking any psychological or imaginative postulations.

Physiotherapy is good for children who have neurological disorders. The outcome for cerebral palsy children is much better fi they get regular physiotherapy. I just do not get the point of making it psychological. Children with mental health problems do not need physiotherapy but targeted play...

I see what you are saying but I think you give them too much credit. We have to guess what they really mean so we always have to wonder if they can be as bad as they seem this time but I have never seen it yet :) They specifically mention FND so this is not a confusion of the use of functional...