Search results

  1. 2

    David Tuller - Discusses M.E./C.F.S and the UK Medical Establishment. 19 Oct 2019

    Thanks to everyone who came, especially @dave30th of course! we from OMEGA felt it went well, there was lots of interaction before and after, and we had to stop the q&a session so as to finish more or less on time. I found David much more entertaining than I’d expected, and appreciated getting a...
  2. 2

    Effectiveness of distant healing for patients with chronic fatigue syndrome, 2008, Walach et al

    Bizarrely, at my workplace we are having a training day next week and someone saw fit to include a session on pranic healing, under the guise of Health and well being. Apparently a variation on reiki, so another form of distance healing. I raised enough of a fuss, pointing out there is zero...
  3. 2

    David Tuller - Discusses M.E./C.F.S and the UK Medical Establishment. 19 Oct 2019

    There is a ‘breakout ‘ room adjacent to the lecture room to give rest space but still hear, also plan to have the lighting dimmed. In the main room it will be rows of chairs, as we do need to fit people in, but we will leave some space for wheelchairs. Walking distance is relatively short. Venue...
  4. 2

    David Tuller - Discusses M.E./C.F.S and the UK Medical Establishment. 19 Oct 2019

    Yes, it will be filmed. The event is free, but anyone wishing to attend needs to sign up through Eventbrite, thanks Priscilla, OMEGA chair
  5. 2

    Recruiting: ME Research UK: Investigating sensory processing and cognitive function in people with ME: a pilot study

    The researchers are aware that requiring volunteers to come to the testing site at Oxford Brookes will rule out the more severe. The issue is the equipment, which is not portable. So they are hoping for volunteers very either from or close to Oxford and have funding for taxis if needed to...
  6. 2

    ‘I can hardly breathe’: Exploring the parental experience of having a child with a functional disorder, 2019, Hulgaard et al

    Chilling advice to tell parents not to trust their instincts. Wise medical practitioners know to listen to the parents concerns, not teach them to ignore them. Has no one considered the potential harm in this?!
  7. 2

    Michael Sharpe: Mind, Medicine and Morals: A Tale of Two Illnesses (2019) BMJ blog - and published responses

    Baffled by the photo posted with the tweet. Can someone enlighten me as to how it relates?
  8. 2

    "Answer to IBS is in the mind" - media coverage of new Chalder/Moss-Morris trial

    The other thing that came to mind when I saw the headlines was that so little is known about the gut. As research progresses we’ll understand better what might be causing such distressing symptoms and new treatments will, eventually, come to light.
  9. 2

    "Answer to IBS is in the mind" - media coverage of new Chalder/Moss-Morris trial

    I do, she says smugly, quite delicious and very easy. I’d never considered making garibaldi biscuits, will give it a go soon. Thanks for all the laughs, as well as everyone unpicking the paper. As soon as I saw the headline this morning I knew I could come over and learn more. Not at all...
  10. 2

    Carol Monaghan asks question of Prime Minister in PM’s questions today 27th March

    I did, and made two formal complaints. Should have made a couple more! In the end I asked that I not have to deal with him anymore so mostly I dealt with the head of year, who was helpful.
  11. 2

    Carol Monaghan asks question of Prime Minister in PM’s questions today 27th March

    No, it was the school SENCO who made the threat, but what he intended was unspecified. However it was clear at the time that swift reintegration was the aim, he wanted to manage it, not let us have much if any say The paediatrician (who was brand new to our case!) and GP were both supportive...
  12. 2

    Carol Monaghan asks question of Prime Minister in PM’s questions today 27th March

    In my experience the school raised the question of legal action regarding ‘attendance issues ‘ after my son had been ill for 3+ years and he wasn’t improving on a schedule that suited their attendance targets. Fortunately we had good medical support so the threat was never mentioned again, but...
  13. 2

    Special Report - Online activists are silencing us, scientists say Reuters March 2019

    Just to add, the article is in the print version of the Times today, Saturday, p.19. I noticed that the headline says ME while the article refers to the illness as CFS.
  14. 2

    COMPare Trials, Ben Goldacre et al

    Oh dear, another vexatious patient who has the temerity to ask a reasonable question! Well done @ScottTriGuy :trophy@
  15. 2

    David Tuller: Trial By Error: An Australian Exchange with Professor Sharpe

    Wow, beautiful letter, well done to our friends down under. And best wishes to Alem and his family. Thanks for posting publicly, @dave30th.
  16. 2

    Home-based family focused rehabilitation for adolescents with severe Chronic Fatigue Syndrome, 2018, Burgess et al (inc Chalder)

    There seems to be an obsession with not allowing naps that comes up over and over again. By all counts naps are good for health, and the half of the world that takes siestas cannot be all wrong! (Says she who grew up in one of those countries.) Thanks for your thoughtful analysis @Dolphin ...
  17. 2

    Co-creating recovery in CFS/ME: A reflexive exploration of a Rebuilding your Life programme

    The last GP with special interest has retired and they will not be replacing her as it was only a one day per week post so not cost effective. We in Oxfordshire ME Group for Action (OMEGA without the hyphen) are in conversation with the service but don’t have much say as to how it is run. One of...
  18. 2

    Co-creating recovery in CFS/ME: A reflexive exploration of a Rebuilding your Life programme

    Hilly is no longer with the Oxfordshire ME service. I did have occasion to meet her when my daughter was referred to the service several years ago. After a long wait hilly came for a home visit. In it she said something to the effect that if E would increase activity in one area this would...
Back
Top Bottom