Search results

We should find out whether physical activity in cold temperature has a blunted PEM response.

I went freshwater swimming last summer. It felt like a much more intense activity than walking, but with a blunted PEM response. I need frequent pauses when swimming. Maybe that affects the PEM response. Stepping out of the water is hard for the body, presumably because the water improves...

She wanted to shut down debate instead of allowing it.

Hopefully TG will be able to learn and change her mind.

I suspect that TG believes all the things Wessely has told her about patients. A small group of vocal militants with false and unhelpful beliefs about the illess, like the existence of PEM. PACE a very good trial, CBT/GET safe and effective, it's just again those nasty patients trying to tear it...

If she is a GET proponent with a plan to avoid controversy and then quietly sneaking GET into LC guidelines, she could do a lot of damage to LC patients. It's bad that she is avoiding discussion of the problems with GET.

I'm sorry but I find it hard to trust Greenhalg. The impression is that she's trying to avoid anything related to ME. The most likely explanation is that her true views would not be welcome by ME patients.

Something that seems potentially significant to me was that the onset of the illness felt exactly like the early stage of an infection, when some early immune response has begun but the full response (with fever and more intense symptoms) hasn't kicked in yet. The full response never came...

I read the chapters that are available and it's unprofessionally written. There's also no data or references for many of the claims he makes.

Mystery illnesses in young women could be in part due to cosmetic product toxicity. It's funny how mouse models of human disease are considered highly unreliable, but animal models of toxicity are somehow considered safe and reliable.

Carnitine is the only thing that seems to increase my ability to function somewhat.

Let's not be bitter. Long covid deserves funding and so do we. This will likely help us too.

The spleen also participates in the regulation of blood volume. If there was some abnormal T cell thing going on in the spleen, would it affect blood volume?

I hope we will also see an influential article on the economic losses caused by ME/CFS and the extreme foolishness of not even trying to address this. We've had some academic papers but we need something for a broad audience.

Apophenia is the tendency to perceive meaningful connections between unrelated things. Especially when the person is told there is some hidden meaning to be discovered. That would seems to be a serious problem in this approach.

@Simon M there is an error in the picture. It says "blinded trials, subjective outcomes" when it should say "unblinded trials, subjective outcomes".

Had she continued to complain about pain, they would have cut out more of her brain. No wonder she was miraculously cured.

Will any CBT/GET illness model believers change their minds due to covid? I'm constantly hearing from covid and long covid patients themselves all the things we patients have been saying. They just want to get on with life but find out empirically that they can't. Reducing activity levels is a...

There are 4 types of multiple sclerosis. How was it discovered that there were 4 types? It's alo well known that there are two types of diabetes.

Do you know anything about how the EU might intend to fund research into under-investigated conditions? How can we prevent that they will fund people like Fink?