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A problem with the microtubule network could lead to the axons of neurons dying. This is what happens in some neurological diseases. The effect depends on which neurons are affected. I suspect it would be fairly obvious if this was occurring in ME/CFS. Maybe the resulting problem isn't serious...

In my family there was 1 case of cancer in 4 generations and no autoimmune disease. Nothing major at least. I think I may have some psoriasis but it's so mild that it's hard to tell. My mother might have some autoimmune thing affecting her fingers but she has refused to get it diagnosed and it...

@Jonathan Edwards You mentioned something about solid phase information and how this could explain why the mechanism in ME has been so hard to observe. Can you elaborate on this? Edited: I was wrong to believe that this gene had been linked to neurological diseases.

I've known for many years that I have a tendency to experience reactive hypoglycemia. It was much more noticable in my early 20s. It's different because it tends to occur 2+ hours after meals and causes symptoms of hypoglycemia, which includes hunger and things such as sweating, tremor in the...

What is the formal name for this? Is i postprandial hypoglycaemia or some sort of carbohydrate intolerance?

I found some meat in the freezer and decided to have a mainly meat based dinner to see what would happen. A few boiled carrots, boiled meat, and a raw tomato. Two hours later, I have not felt any uncomfortable hunger and my digestive system feels good. Energy is holding steady.

Would you agree with the following idea? If you can reach a state of acceptance of your illness and the limitations, then you can better work within those limitations and achieve more than before because you're now able to set realistic goals, instead of setting goals that don't respect the...

I had actually wanted to cook some meat today but there was a long queue in front of the butcher shop. As we all know standing still in the heat is not a great idea for us, so I just didn't bother. Tourist season has fully begun now and there seem to be even more than usual. PS: Carnitine...

So you believe it's likely that in my or our case this is just a signal for needing more nutrient rich food? I've been eating a little too much bread lately and neglecting meat and fruit intake (due to recovering from a muscle biopsy and simply not having the energy to cook properly). That's...

Nitric oxide donors. Various drugs used to treat angina pectoris.

The best meals for preventing this seem to be rich in meat and cooked vegetables. Maybe it has something to do with needing more amino acids than normal, as suggested by research finding lower levels of anaplerotic amino acids in ME/CFS?

Despite an apparently normal food intake, I sometimes feel like I'm starving. I can also become hungry again despite still having a full stomach from the last meal. What could be causing this?

Long covid has made the idea of persistent infection much more credible. One argument against persistent infection in ME/CFS has been that as the health declines, one would expect the pathogens to eventually win and cause a rather obvious infection. Maybe this is a stupid idea but: is it...

I wonder about this too. FND has some patient support now, but in 20 years, will the majority of FND patients rebel against what they perceive as a nonsensical and pseudoscientific model of care in the same way ME/CFS patients did?

I read the article by FND portal. I see nothing in there that would validate a diagnosis of FND. The person has some neurological illness that doctors cannot diagnose. If FND was a neutral term that meant "unexplained neurological illness" it would be acceptable but it's got all this...

I've had an arginine infusion as part of a medical test and it made me feel good. Maybe that's got something to do with NO?

The outcomes seem sensible to me.

Can we even choose an identity? I have repeatedly seen comments that lecture people with chronic illness for identifying as being chronically ill, or disabled. These comments seem to reveal the belief that identity is a choice, and that identifying as chronically ill is a bad choice. If you're...

One might call it "chronic EBV"?

This is very possible, as I don't have contact with that age group and little exposure to its social media.