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For B12 it is my experience that supplements do raise the level in the blood. However despite my numbers being fine (even marked 'high'), switching to injections did make a difference. Not a big one in my case, but enough to consider jabbing myself in the leg worth it. Having 'enough' B12 in...

I suspect it's a mix of confusion, saving face, and "we can't just do nothing, can we?". It's really hard for people to change course 180 degrees, it'd cause a lot of cognitive dissonance. And even if they would now be convinced the BPS approach is worthless, it's still a hard sell. So course...

Still having some issues reading despite Dutch being my first language.. But I saw somewhere in the conclusion (p147): Niemand pretendeert ook dat de CGT de CVS patiënten zal genezen. Noone pretends/claims that CBT will cure the CFS patients. In combinition with the shift from GET to...

The Jason et al. (2010) document can be found here https://thescipub.com/pdf/10.3844/ajbbsp.2010.120.135 I can't see the proposed modifications to Fukuda right away but I'm sure someone here knows or can figure out what the above refers to.

Not currently enough clarity to read properly but have found the bits on patient selection: Inclusion criteria: (i) age between 18 and 55 years; (ii) met Fukuda case definition criteria for ME/CFS (Fukuda et al. 1994), without the Reeves et al. (2005) modifications but with additional criteria...

Indeed. Also Fukuda is sometimes a pretense of using good criteria while effectively watering it down to 'persistent chronic fatigue', no better than good old Oxford. I've come across this in a study by the Dutch behaviourists, and this was also mentioned as a problem in the following...

Yes I had a similar response. Something along the lines of "I hope that doesn't mean what I think it means". These terms show up in all sorts of contexts where it's less about science and measurements, and more about "someone somewhere had a positive opinion on this/has seen this work for a...

That's what I thought too :thumbup: But no, I found this profile stating "Christopher Eccleston is Professor of Medical Psychology at The University of Bath in the UK, where he directs the Centre for Pain Research." https://brainmind.cochrane.org/about-us/meet-senior-editor Isn't Bath where...

Very true. Someone made the point - I think on the Cochrane IPD thread - that small shifts in the right direction are more robust than big 180 degree course corrections. The small changes represent new ground that can be held, while a big swing can be thrown out as someone having lost their...

That seems to have happened in The Netherlands with the Gezondheidsraad committee. There was a lot of outrage at the BPS-heavy selection of committee members (most notably dr. Knoop, who made the "strict criterion of recovery" comment on PACE :facepalm:). But also patient representatives, who...

Recent coverage of this on Health Rising: https://www.healthrising.org/blog/2018/12/16/deconditioning-denied-chronic-fatigue-syndrome-deconditioning-myth/

I'm still in the trial phase but I'm pleasantly surprised. The main reason I started something new for pain was neck-shoulder pain and headaches, and a combo of naproxen and acetaminophen not touching those at all. This does, without the addition of acetaminophen. That is, the neck-shoulder bit...

Good question :) I don't know if you intend for this to be a discussion on this topic, but I'm happy to share what seems to work for me. I read the abstract and leaf/scroll through the paper to see what figures and sections it has. Then I go to the references. This may only work after you've...

The withdrawal is still not in effect, https://www.cochranelibrary.com/cdsr/doi/10.1002/14651858.CD003200.pub7/full is up without any notice etc. How long do these processes usually take? They have recently managed to withdraw the Chinese herbs one so it's not a case of "tech is hard, we need...