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Does anyone here know what science they might be referring to with regards to cognitive processes changing the brain and how that applies. Is the brain (via CBT) changing symptoms or what is underlying those symptoms? And how can they tell that is what's happening? I'd like to understand...

Can I find it ironic if this paper focusses on the patient in terms of how they should be approached by the health care provider? How to treat the patient (empathy, respect dignity). For our illness group and others defined away by the BPS this issue is moot. I imagine clinicians have learned...

I may well be wrong. Although when I wrote I half expected someone to think I meant stock options. PP's LP would have to be publicly traded for that. It was meant to indicate an example of how financial incentive motivates people in favour of something. But if the NHS rules are as they are...

This is just speculation and perhaps of no real help but I see it IMO more likely that Phil Parker was wanting to expand his empire and running into trouble, offered a number of relevant BPS'ers a financial incentive to back LP. Sort of like you would offer stock options and then the person is...

Very likely many patients who engage with specialist services are at an early stage in their illness so I find the statement comprehensible. But of course specialists don't follow up long term so have no idea how a person's awareness of their illness might change or become better informed by...

I remember back before S4ME came into existence that many people were talking about a new supplement called Miyarisan? Meant to boost butyrate production. Many of us still seem to be around ME forums. But maybe it's not as simple as that. I hope that they have found something useful and that...

If that statement turns out to be face value than I suppose that could be good (I'm writing without the benefit of having taken some time to think first). But . . . I do not trust this area of endeavour at the moment. I have my reasons. Language has proved to be a more slippery a more...

IMO, this is a core issue for the BPS supporters. They, like anyone else, see themselves as good people, competent people who do good work to be admired by the general population. This idea of harms strikes the kind of blow that is too painful to acknowledge. So they (probably with a frisson...

I see what @Daisybell is getting at though. If these researchers do good research (but in bad faith) then the research findings are still valid and can be viewed as such by others who might find some tantilising clue to some biological finding. Or not. The Fictional neuro disorder people...

What it doesn't tell us is that they all went back to work . . . as LP coaches.

https://www.theglobeandmail.com/canada/article-long-covid-is-painful-expensive-and-so-far-impossible-to-cure/?fbclid=IwAR2TQSQIGmf9DFObzhG78k9HvA5t43JHEMGRUC5Wblq2k4jijZ78ZHMgg4I Regarding this article: the author is a reporter on mental health. Apart from a few rather serious diagnoses in...

I don't know about cheaper, it might be. But it sounds easier than the teaspoon -- but I think that's because I've watched too much tv violence to ever think of spoon and eye in the same thought.

I have a trick for getting good aim. After tipping my head back instead of holding the bottle straight down I angle the tip so that it is maybe 10 degrees toward my forehead. It seems off but actually gets better results re hitting the target.

I use both. But I'm rather flaky about which I use when. Especially at night I just grab for a bottle and whichever one I grab is what I use. But I use them multiple times a day and every time I do I have a collection of grit lining my eyes. ETA: the gel I use is still in a drops bottle it...

I would agree that ME charities have not been offered much in the way of opportunities to really present facts in depth in the past up to the present. However, IMO, charity spokespeople have lacked a certain savvy understanding about how their words will be used. I have read public...

Is it possibly a matter of degree? If I don't use any eye drops within a 24 hr period I will wake with my eyes glued shut. Is this also true for dry eyes due to screen time or getting older? (It's a real question) Interestingly this started years ago with tearing -- my eyes would water when...

Agreed. I don't think that anyone ATM has enough insight into how sleep works and how it can be broken enough to offer any solutions along the lines of something curative. ETA: I don't know if what I wrote sounds like that was what I was suggesting. I absolutely think sleep is an issue and I...

I have a thought I'd like to post but it goes back to something so basic WRT CBT that if your reaction is Duh! understand that I"m right there with you on that. Usually, I manage to read only (mostly) and am not so good with synthesis of the information. Apparently, my brain was doing some...

I'm sorry to hear about your experience with the health system @rainy . It very much sounds like they were fixated on things that interested them and your stay was all about verifying their view and meeting their needs. This is exactly the problem in ME care to date. Many institutional...

Yes, to the above post. It's quite telling IMO that the BPS cabal has gone on at length about PwME stigmatising mental health by violently shouting that "their illness is physical dammit" because we do not want to be viewed as having mental ill health. And the cabal further goes on at length...