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Sorry, just one other thought on the issue of anxiety. IMO it's not all the same thing. Not just the difference between psychological and physiological but in the psychological arena there is acute anxiety -- I represent this in my mind as (over the top image) hands furiously flapping and...

I don't disagree (not that you suggested I did) but when all we see is this explanation it needs to be balanced by recognition of the more prominent alternative. In my mind explaining the physiological underpinnings of what's happening to someone can actual go a way to alleviating some anxiety...

Well, I think we can all agree that some people with LC will slowly recover over a period of months to a few years. The issue then is what caused recovery. If everyone who has LC at some point visits a clinic -- it seems clear at this point that clinic staff will claim the victory over...

This should be in main stream news media stories front page online and print. People are NOT aware. All they seem to hear is that Omicron is mild -- so what's the fuss.

The changes in brain connectivity may be the same in both cases but that same change is happening in two distinctly different situations. For the first encouraging more physical activity may prove problematic beyond a small amount or any amount at all possibly. For the second it seems to me...

As usual the direction of causation is wrong --- based on what the researcher would prefer. Rather than going through all that work of understanding that when people are ill over a long period of time it is the illness that affects how they can function in the world in all areas including...

With regards to: https://research.rug.nl/en/publicat...lammation-in-women-with-chronic-fatigue-syndr This study was funded by the Q-support Foundation (UMCN-140928-00). The was no role for the funding body in the design of the study, collection of data, analysis, in- terpretation of data, or...

I just had a look. I see that the research of the thread title is based at Zurich and doesn't indicate NIH funding. I have extreme memory problems and confused the sci-hub link: https://www.sci-hub.ee/10.1080/21641846.2016.1205876 with the research of the thread title. Whenever I read a...

Does anyone have any ideas, is there anything that can be done to put pressure on the NIH to STOP funding stupid, useless research that is just money wasted when they are always saying there is so little to go round? I'd rather one very good expensive study than hundreds of pointless ones...

I don't know about others but I find this very disheartening. You expect this from the cabal. But this 'support' that is really just more gas-lighting even though well intentioned is just worse somehow.

As we know from long experience -- thoughtful words have never translated into thoughtful actions with this group. The thoughtfulness is a veneer even if they sound sincere as I expect they no doubt believe their own words and mean what they say. But their actions always speak altogether...

There are real documented cases of people who's physiology prevent them from feeling any pain at all. Is this also an issue that is amenable to training -- teaching them to feel pain when it would mean helping them prevent injury? Yet for those whose physiology has somehow modulated to...

It really is a good video. It was quite poignant to see Graham in the film and photos of Bob and Alem. And I apologise how this might sound, I have little tether ATM and this is important to me so while seeing the video is all well and good and it is well done I would like very much for us to...

It's very likely not a study of ME. If anyone feels inclined they can email N V-C and let her know people with ME know it's not. She is associated with this clinic: https://tmslosangeles.com/meet-the-team/ Although her name doesn't show up she has done other research with team members from...

The above link to the FSS should go into the library. We have a link but I checked and that one is broken. @Cheshire

This is probably not a popular comment but IMO the problem with JLA PSP is that there are 10 priority choices. Again IMO it's likely that for many illnesses people will broadly agree about the necessity of the first one, two or even three and from there diverge to things are are important but...

From my POV one of the problems of sociological discourse is that it is too self-contained. It (and possibly this paper) would benefit from some common sense grounding via understanding the history of the illness. And of course actually actively listening to PwME without their preconceived...

I know nothing much about Cochrane and how it works. I have no useful contribution or insights to make. But I am in a particular frame of mind presently so . . . . . . from understanding of some of the problems thanks to the Larun review I think I'll just have fries with my reading and call it...

Although it can be found (for posterity) in the wayback machine: https://web.archive.org/web/20210601040219/https://www.swissre.com/dam/jcr:788aa287-7026-430a-8c14-f656421b6e71/swiss-re-institute-event-secondary-covid19-impacts-presentation-michael-sharpe.pdf

@Lilas post got me wondering. So I had a look. And I found this: https://www.bacp.co.uk/news/news-from-bacp/2020/6-march-government-update-on-statutory-regulation-of-counsellors-and-psychotherapists/ So apparently there needs to be some lobbying for better accountability here. It can be...