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@Mithriel I agree with your post. WRT the 'research' though I think where people's traits are involved there is the need for a lot more nuance than than any psych questionnaire or indeed experiment can give. Your use of the terms nervous and timid are normal words for what can also be...

To me the real problem is the preconception that happens before any sort of research is done. It's more than just a hypothesis -- it cannot be refuted. People agreeing they feel better after being told to feel better is their cure. If you start with something that cannot be refuted how can...

Interesting thoughts. If it was me sending info I would have not sent anything official but simply let her see ME from the perspective of someone with ME. That could be through any one of a number of excellent videos that talk about symptoms to suggesting she just noodle around here in the...

Just posting to say . . . I don't trust myself to post on this. Oh wait, I did just leave to wayback archive this. For posterity. And since they pull interpretations out of thin air I think I will too. I'm thinking they implicitly hoped that the treatment was in their interpretation of their...

Thanks for making this and the other thread on hospital stay needs Luna. It's good of you to take the time and I'm sure some of us will find it helpful. I've bookmarked the hospital stay one myself as I know if I ever need to go -- there will be issues. Just one thought on this thread though...

Yes, I'm not on twitter so for my own personal note to posterity - thank-you Jonas Kunst. It's always encouraging to see someone who can tell the difference between science and opinion masquerading as science and who can recognise the main support for pseudo-scientific opinion is the straw man...

Thanks @jornt_h for responding to my query.

Me neither. I'd say it's more the opposite . . . fear of the scope of this illness fuels disbelief.

Hi @jornt_h I'm curious to know what brought the question up for you. Since the guidelines were recently improved / updated in the UK are you thinking how this might impact other countries? And are you hoping to encourage new guidelines where you are? In Canada the ME guidelines have been...

That would be a beginning.

And what if the solution is not changing cognitions to reduce stress but to change some external social factors contributing to stress. Is Chalder up for that?

I agree their work is entirely circular. And although not strictly the topic of this thread I am beginning to think that is because the research is not at all the point. A lot of the funding (not all) of these seriously goofy studies comes directly from the university or universities that...

Could be. I'm really not at all sure how this will ultimately fall out. I think it might slowly turn out to be a slow burn. There are probably many, many people who have not yet spoken up about their situation. They may yet do so. So much about the ending of this saga is unclear to me. It...

Said before but worth saying here and elsewhere again. One common thread among the changes in perception of LC and ME is a person now coming into contact with the illness either themselves or someone they know well. Otherwise the default position is the one the Wessely school has pushed so...

In reading this there is a big problem in what is NOT said. If this research does indicate what they have reported it seems that using the term MUS is misleading. Ad they mean MUS to be psychologically driven illness who's cure we are all well acquainted with. But, there is nothing at all...

Francesca Steele implicitly shows us a profound problem with the very people she is turning to for help. She herself says (now explicitly) that she was not only ashamed of her ignorance but also that she was dismissive of ME. She comes across as a reasonable and not unempathetic person yet...

From McMaster University. I see they are trying to take a biological approach. It's hard to quite pin down what they are trying to say here. Open to some interpretation I think?

Don't want to take thread off topic but don't think starting a new thread is best either. We haven't heard from Hilda recently but she has been posting on her blog still. I thought some might be interested if they haven't seen them. Here's a link to some recent entries...

So, to sum up . . . #nowordswithoutaction

What I am starting to find interesting is that I think I'm starting to see a new pattern in papers. Someone can enlighten me if they have better knowledge. It looks to me like the usual British writers of suspect papers are increasingly teaming up with researchers from outside UK. There was...