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Hi @Snow Leopard It's not so much the idea of being for or against psychology for me as it is that after a while hanging around with ME and seeing what is researched that it seems there is just an awful lot of it. And in terms of the big/main goal of getting well it is of limited (or no) value...

My apologies. I've had my say but I don't seem to be finished with some other thoughts on this subject. To quote: On the face of it this seems very reasonable. Avoiding the pernicious effects of coercive therapy treatment to assistance with living-well. Sounds good. There are three...

You know there seems to be a window for some therapy here. I find it disturbing when there are people out there who get excited about the idea of punishing people whose crime is to be in extreme pain and then take steps to alleviate it. And they are often loud (and IMO irrational) voices for...

My problem with regard to this type of research is: Quote from text: The type of therapy that is described (ie the other types that don't posit a model of illness) is only about changing our cognitions as a way of improving emotional well-being. In my opinion having been ill for decades now I...

Is it? Because I don't think so. I presume by ethically he means the UK Health Research Authority (IIRC) but does anyone know what he means by legally?

One conclusion of this study from an outside POV is that it took this paediatric "ME expert" at least 15 years of research to decide that patients and their carers should have some input into subjective measuring of outcomes in their illness. With the caveat as we well know that even this...

That is a beautiful letter @Trish . Thank you for your effort. Clear and on point. I confess when I see this type of 'research' I am given to wonder at times how it is that the person has convinced themselves, in the interest of helping, that this will be of any benefit. And so the...

I have no idea but I wonder if the creators of the new-fangled methods in delivering psychological therapies understand that they are drifting ever closer to rather oppressive forms of social engineering? Under the guise of helping. Always the irony with this lot.

With all the stories of this nature finding their way into media I wonder if there might be some value in pushing for a new timeline for ME. Although it can't be good to suggest exercise regardless due to not knowing who might benefit and the harm that befalls those for whom it doesn't I...

This is just my opinion but Jen Brea is a big girl. As a woman on social media with a huge presence and following she must know that her public musings will come under scrutiny. There is a line to be drawn between discussion and possibly criticism of those views and ad hominem attacks...

Just as a side-bar for @AllenJB since you are new here you might not be aware of the History of ME and how it has been subverted by influential people on behalf of powerful interests (namely insurance). If you are interested (and don't already know) you could have a look here as a starting...

It's a bit of a nit-picky point but as there is now some good discussion on the divide between the biological and P-S model I'd like to see more discussion around the social aspect of BPS. All three of these components have some validity for illness (just not in the ways twisted by it's...

Even philanthropy isn't philanthropy anymore. It used to be an act that had no financial reward. Now here it simply means high risk-high reward.

I'm beginning to form an opinion that this way of thinking shows something else. When things are working more or less properly at the top echelons of power then those people who can't think for themselves (even if they think they can) will follow a herd that is not heading off a cliff. But...

Always good to see someone who wants to bring to light the issues around research integrity. Two things though: It seemed to me there was a veiled accusation against open access. It could just be that the opinion was that the publishing incentive/financing needs fixing but there was no real...

Just IMO, I don't think we are dealing with rational thinking or behaviour from the people who still insist on spouting nonsense on this subject. There is ample opportunity and means to properly evaluate and understand this issue around what PwME are saying regarding the PACE trial and their...

How convenient to not have any knowledge with which to assess the PACE trial while calling for more of the same.

Or it could also be looked at in another way. My being ill with ME, considering the symptoms I experience as a result--they affect the way I respond to stress. In other words, to put it differently--if I were not sick with this my response to stress would be very different as a healthy person.

I fail to understand why physical attendance at the school is so necessary. Wouldn't it be more productive to have a distance learning package that can be delivered by internet. There are already a number of children who use this (at least here in Canada and I would imagine elsewhere). And...

Yes, agreed. My statement suggested that the author has some control but I agree this is usually not the case. I'd still like to fathom why editors need to be so economical with being precise. As I said, it amounts to being careless and demeaning about the whole group of people they're...