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Moved from Norway - CFS/ME Research Conference Nov. 25th-26th 2019 Thanks for your response. I hope the project findings get more wide spread attention over time.

Moved from Norway - CFS/ME Research Conference Nov. 25th-26th 2019 @Kalliope Those are seriously good slides of information. Thanks for providing us with the info. I do have a question and scanned for the answer so sorry if I missed it but I'm wondering now who was the target audience and...

Could it be that the real people behind the problem find it easy to hide by being identified as the journal? Repeatedly we hear the journal failed to respond. Well who is the journal exactly? There is reluctance to call out the real individual people who protect the system status quo which is...

More from the text: When we first submitted our concerns about the 33 trial reports to JAMA in March 2013, we were naively hopeful that retractions would quite quickly follow. We soon learnt otherwise. Journals were, and are, extremely reluctant to even publish expressions of concern – JAMA...

I don't know. I don't doubt their commitment.

There's also Cure ME.

Well, I knew my post would get a response. I understand the tax law thing. It's just that it's not like there aren't any other groups that could be donated to in other places. It's just my opinion but I feel that more breadth of research is good. If @rvallee 's post is correct then this...

Sorry but why the new franchise? It starts to look like empire building. There is never a single announcement from OMF without a donation appeal. I'm starting to feel squeemish. I'm not trying to knock what their doing or have accomplished. Just saying how it starts to look is all.

Pediatrics journal abstract: https://pediatrics.aappublications.org/content/early/2019/11/25/peds.2019-1522

Part of the authors conclusion: [What should we do? It is time that journal editors agreed to a moratorium on the publication of meta-analyses, especially those whose analyses are based on very few events reported in only a handful of trials. Sadly, the current peer-review process no longer...

Just for some context this is what the NHS defines health anxiety to be: https://www.nhs.uk/conditions/health-anxiety/ From the conclusion section in the paper: This study identifies HA as an important target for treatment, trial findings should be further replicated on a larger scale. Does...

Using some form of oral pain relief inevitably ends up being a blunt instrument. I have found it helpful too at times as I have fibro also. Anything that helps is also inevitably temporary but there are things that have worked for me. I use hot or cold on the site. It depends on what feels...

In the comments the author considers the possibility that commentary 'trolls' are some of the people who fear progress. Well, thanks to this Dave Barry guy for the ME mention. Much appreciated.

https://jamanetwork.com/journals/jama/fullarticle/2756187?guestAccessKey=c1202c42-e6b9-4c99-a936-0976a270551f&utm_source=For_The_Media&utm_medium=referral&utm_campaign=ftm_links&utm_content=tfl&utm_term=112619

I don't see any online presence for the "Innovative clinical training and trials healthcare worldwide initiative" that funded the 'research'. Certainly worth wondering what this initiative is about.

I don't think TC et al have ever really grappled with dealing with anyone but the least severely ill (who are still very ill and deserve better than TC). I don't think they really know anything about the severely ill from any experience as health care providers/researchers. One of the things...

What I see in all this are things that looks superficially possibly correct. A whole story is built around how this supposedly works and for anyone who has no deep knowledge of the involved systems and/or is not capable of being aware of what it is that we don't know (what gaps there might be)...

I think SW has taken quite the offense because he knows exactly that this charaterisation of people especially women is rife within parts of medicine and psychiatry. Although psychiatry will couch their language in rather softer tones and even believe (it's often all about their beliefs) they...

I read 'mad' more to mean imaginary or moral weakness. In which case I think the headline is correct. Mad is slang and not a psychiatric category. That does open up a discussion though of what I consider an issue of how mental health labels are created--how accurate/meaningful they are. It...

When my illness was much milder long ago I had issues with cognitive PEM. It too was much milder but had bigger consequences (mostly). So I would forget where I put things, occasionally left my car keys locked in the car and would enthusiastically start some project that needed/wanted doing...