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The BPS cabal would like very much to spread this misinformation. I suspect that in the past some bio research was greeted with perhaps less scepticism but that certainly is not the current climate of the social media active among us. It's just a convenient point score in saying that as it...

Well, as we here all know -- there is nothing quite like personal experience of ME and trying to expend energy we don't have to clear up any misconception in that regard (what PEM is and how it affects our functioning). Maybe he'd accept a blood transfusion from one of us? Actually now I...

This can explain so much of why the cabal believe they're on to something. Vague general mild symptoms and poof presto you are healed. Start the gravy train.

Interesting. I missed that point. I would have thought that all the time spent with the patient added up to more. Maybe Italy could get interested in exporting consultants to other countries on how to save money this way.

There may be but there will be no access to the for many unless there is data to support their use. If there were better management strategies in place then many could benefit from better QoL and perhaps be more able to engage in the much needed advocacy. Perhaps getting drug manufacturers...

Similar point to Wilhelmina. You can tell people things. They may even be true but the person hearing must first believe that it is in fact true. So far I think nobody much takes it seriously. When my kids were in school I expect I would have got a similar response from most parents I knew...

Not just Britain. Famously, at least locally, a man was tasered to death at Toronto International Airport because he was agitated. He was frightened, alone and couldn't speak English. Just in my opinion but all of this horror stems from a simple axiom gone to far. Time is money. There is...

In terms of advocacy I'd like for there to be much more robust data just for the symptomatic relief of symptoms. So many of us as we come to being ill try to invent our own cure (firstly) and then symptomatic relief. It takes up so much time, energy and resources that could be better channeled...

I should probably also point out that the focus on the purely psychological leaves out the very real issue of not only the social but the biological. Many social factors that contribute to illness when ameliorated are more preventative in nature. All of illness is biological as we well know...

The lack of awareness of psychologists can be breathtaking. It's perfectly reasonable to provide information and promote healthy behaviours. No problem there. But all of the promoting I've seen is rather tainted with the idea of bootstrap moralising. If you want people to eat well pay them a...

This is how it seems to me. Of course there has always been this type around but now it seems like they are becoming as common as toxic plastic washing up on the beach. It's disheartening to see such a tsunami of human corruption. I admire those that are able and do fight the good fight.

Excellent. More clear and precise writing hitting the target. I can't help but wonder when reading articles like this one as to what type and how much pressure there is from some outside source to keep this particular area of research 'viable'. And not to be all conspiracy minded but exactly...

It's been ages since I've had any kind of Christmas Wish. I do wish this Christmas for this article to be widely shared, considered/pondered/talked about among the medical/research establishment. I want it to go on tour. (now just realising there are no fire works emojis)

The underlying premise implicit in the above abstract (in more general terms than just abdominal pain) is that there is a large category of people who respond to life's difficulties with any of a host of physical symptoms that are not in fact any real pathology as understood in ordinary medical...

Ah, but they aspire to be. ;)

Yes, I don't see how they can find a way through to good robust research and/or taking in patient experience when their are ideological/self-interested/politically motivated people as part of the EUROMENE team. But they do seem to be well aware of this. See here.

https://en.wikipedia.org/wiki/Mistakes_were_made

For me there is a small point here to be made. It stems from this issue but is a little broader (so includes CoI). Making new and improved policies around CoI or other important issues in the process of accepting research and clarifying it's potential problems or limits is all fine and well...

https://www.clpsychiatry.org/about-aclp/vision-mission-bylaws/ An organisation without any relevance to illness except as unwitting (and possibly coerced) users of their product. Absolutely about empire building/business opportunities and NOT about medicine. A vehicle for disseminating...

Forgive me here because what I'm trying to say will be a little vague and I am always a suspicious of motives type of person. I may have the completely wrong idea but I wonder if the choice of FMT research stems in part from not just specific concerns of researching ME but also works to have...