I'm wondering if using S4ME twitter account in places like this, thanking AL for a generally good article might help S4ME be more visible as he gets a lot of responses from PwME?
And people with ME are in a good position to understand why it is not ready.
Good to see this article take aim at the foolish idea of diagnosing generalised anxiety that nebulous free range illness that is the panacea of the incompetent.
It's one thing for incompetent fools to run loose...
Given how much money will be handed out for long covid I think it is time to bring to light / exert pressure on the funders of trials for ME and covid.
It seems that even as so much money has been wasted on the BPS cabal there is still massive sums available for 'researchers' to waste on...
What a nice sounding pile of baloney. It hasn't worked so far. Writing sentences that sound conciliatory and caring isn't going to change that. It still won't work even if you're nicer to patients and really, really listen.
This is the Little Engine that couldn't. I think I can, I think I...
Yes good point. I guess more accurately they presently are not understanding the fallout and their being held accountable for having run everything their way all to their advantage with only their narrative of decades being what people know.
Yet it may be that they understand this too and are...
Also, it does introduce the question: Is it ever OK to question the ethics and integrity of any research? Should all research ideas be allowed?
Psychology is littered with research that has had horrific consequences / been found unethical etc.
So again, when exactly is it OK to speak up...
Predictable. Well / healthy people viewing a group from their POV and forming opinions on what they think is going on.
Hello, I'm here firstly, because I can't be out and about. Also, I am no longer alone with this illness feeling isolated. And this is a place for advocacy to stop to...
IMO.
I agree with the timing ( some time after the 1950's) but not simply availability as the culprit. All manner of non-food chemicals have entered our food system. We really don't know how the many chemicals that are in our foods will affect us over the long term. And there are so many of...
Hi @Wyva
To me there are two separate but related issues here. Everyone should be believed (with small caveats that occasionally someone will lie as we've seen with people on social media fundraising for the cancer they don't have). But generally people should be allowed to present their...
And so, this is useful information how?
And still looking for more detailed explanation for 'mental health'. Are we talking long term? Or just in the moment? And what sorts of solutions are there for these 'mental health' problems? Anything beyond changing people's attitudes to how they are...
Yes, which makes this so very timely. If you google you'll be led to metaphorical ocean liners full of describing / explaining / diagnosing psychosomatics, so much so that it must be everywhere. There is a very huge imbalance in the literature with no or very tiny and well hidden criticism...
My memory of that is a little different. I remember it as her being asked (by the tribunal) to give examples of the harassment she kept referring to and this was the only example she could come up with when pressed.
A bit on Interoceptive predictive coding for people like me who haven't got a clue:
https://www.frontiersin.org/articles/10.3389/fpsyg.2011.00395/full
"The concept of “predictive coding” overturns classical notions of perception as a largely bottom-up process of evidence-accumulation or...
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