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  1. Snowdrop

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    IMO both are fair statements. Psychotherapy is the wild west. And it's not just the therapy that can harm but the therapist may do harm as has been documented time and again when a therapist crosses the line taking advantage of a person when they are at their most vulnerable. Psychotherapy I...
  2. Snowdrop

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    The problem is not just that their opinions hold sway but that they have been successful at confabulating their opinion with science. My point was that stories must be seen for what they are not for what they are not. And the point must be continually made as the BPS continue to be...
  3. Snowdrop

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Individual stories are different in quality from any other reporting using science methods. Any given story can and will be full of factual inaccuracies. The truth lies in the honest telling of external facts that can be validated (I had a virus at such and such time etc). How people respond...
  4. Snowdrop

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    If they cannot influence a change in the draft at this point I expect the BPS to continue to damage the process from the outside by using the hilarious and outrageous slaging of ill vulnerable people and declare that we have subverted science with our militant lobbying. We all know how...
  5. Snowdrop

    CBT and CFT for Chronic Pain, 2021, Hadley and Novitch

    That would require them having an in-depth understanding of how pain comes to physically operate chronically in people. And as yet I think they have no clue so helping pattients to understand is skating over reality (a little white lie to make them feel confident in the treatment and provider)...
  6. Snowdrop

    Canada - Unknown brain disease in New Brunswick

    I'm not going to read the guardian article but the CBC reporting was that when the news broke and there was no clear answer as to what was happening local people became concerned and worried about whether they might be affected eventually. This seems a reasonable concern to me. There is no...
  7. Snowdrop

    Are Functional (Psychogenic Nonepileptic) Seizures the Sole Expression of Psychological Processes?, 2021, Sojka, Paredes-Echeverri and Perez

    Also just woke up enough to notice the other funder of this uh explanation of a belief system. http://www.baerfoundation.com/ I understand why they might fund something to do with epileptic seizures but why this? It will benefit no-one except the researchers careers / pockets. that seems a...
  8. Snowdrop

    Are Functional (Psychogenic Nonepileptic) Seizures the Sole Expression of Psychological Processes?, 2021, Sojka, Paredes-Echeverri and Perez

    One might then legitimately ask why this 'integrated' approach that embraces both the physical and mental components of illness always ONLY deals with these from a psychological perspective and not a physical or even social (as in outside the person's ability to influence) perspective. Or is...
  9. Snowdrop

    BPS attempts at psychologizing Long Covid

    I see. That would be worrying in so many ways that extend way beyond this then.
  10. Snowdrop

    BPS attempts at psychologizing Long Covid

    Chief editors for editorial and opinion pages at WSJ: https://www.wsj.com/about-us?mod=wsjfooter I have no idea how something so ill-informed and full of hate managed to be OK with these two.
  11. Snowdrop

    BPS attempts at psychologizing Long Covid

    I think it also shows their absolute panic and anxiety over economic issues. Their virulence is akin to 'the sky is falling'. It seems to me that the people who are simply following the guidelines are the ones who are following the 'keep calm and carry on' motto rather better.
  12. Snowdrop

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    I know this might seem like a non-sequitur but I think I might go back and watch 'Yes Minister' Maybe Sir Humphreys might have a clue.
  13. Snowdrop

    'Reluctant pioneer': A qualitative study of doctors' experiences as patients with long COVID, 2021, Taylor, Chew-Graham et al

    Might have more to say later but for a start - calling it "The Reluctant Pioneer" just sounds oxymoronic like a form of self-adulating humility. Can it really be 'pioneering' when it comes decades late and about 80% short? If nothing else it shows this group for what they are. Only people with...
  14. Snowdrop

    Idiopathic myalgic pain (fibromyalgia): supportive management and prevention with Pycnogenol®, 2021, Belcaro et al

    Thanks. Right. Now you say it I recognise my error. Willow bark NOT pine bark. So something new then.
  15. Snowdrop

    A general thread on the PACE trial!

    Oooo, a psychiatric nemesis to the villains who created the MUS horror. The plot thickens. And kudos to 'James Nesbitt' for standing up for humanity and reason. Lucky man. ;) ETA: I'm probably being over enthusiastic here. But here's hoping . . .
  16. Snowdrop

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    I see this as more of a cultural problem. People should be allowed to convalesce. Medics should use common sense and not play into the gladiator view of human existence. I read a headline in the news the other day that Goldman Sachs is pushing to limit working hours to 80 hours a week. So to...
  17. Snowdrop

    Article in Vice: The Medical System Should Have Been Prepared for Long COVID

    I agree it would be appropriate to not underestimate the influence that pop culture has in the form of medical dramas or even the the most ridiculous fluff zine pieces that one can read while sitting in a doctors office. And even the dramas that strive for a high degree of verisimilitude fall...
  18. Snowdrop

    Idiopathic myalgic pain (fibromyalgia): supportive management and prevention with Pycnogenol®, 2021, Belcaro et al

    Isn't pine bark what the native north americans used for pain? I thought this was how aspirin was discovered. Maybe I mis-remember or confabulate something here.
  19. Snowdrop

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Yes, some of the right people know and have been sharing that yet somehow here we are and the average person and even medic when confronted with the reality thinks all their covid symptoms somehow are different for us. Again, I know that's not 100% it just feels like it shouldn't even be an...
  20. Snowdrop

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    It seems there is still communication work to be done to help the world at large know that PwME have many symptoms similar to covid and have done for a long time. You'd think for listening to all the LC opinions that ME truly is just being tired all the time. Although I expect there is more...
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