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Not that I'm capable of writing a letter but having read a few responses to this sort of nonsense I find the best responses incorporate answers to anticipated further responses while addressing what has been said. Wording needs to anticipate leaving no room for wriggling around again with their...

Even when there may be some effect I think there may be room for a wide range of interpretation of what is happening and why. I often wonder with the use of these medical terms if there really is a comprehensive understanding that accounts for all of the various functions of these organs...

My question is, might there still be coercion from the institutions supporting the therapists in that if parents do not comply they risk having social services get involved? Because if so this is a very clear and serious problem. It does not allow for parents to make decisions freely. I say...

This research was done through the Ottawa Hospital research centre Ontario. The authors are from the epidemiology dept. It looks at least like there was an attempt to come to grips with whatever is going on for people with long-term symptoms after covid and relating them to ME. Their list of...

But isn't CBT a treatment for depression?

Hutan brings up a good point. If we are to escape from the iron grip of the BPS sucking up all of the funding suggesting international partnerships for research might be a way of combating that by linking to people outside the BPS bubbles elsewhere. I think there is the potential and the will...

Lots of good suggestions. Just one observation. Some of the suggestions including mine at the bottom here can likely be picked up by the BPS types (and they will just so they can predetermine the results). I'm not exactly clear on the precise remit of JLA and what may not be appropriate but...

I have, for decades been of the opinion that democracy is fragile. Now I'm here stuck at home and everyday I see that science as a guiding concept is even more fragile. I wish there was some kind of analysis as to why superstition is so robust. We are technologically quite advanced (that...

Apologies my comment really was obscure and based on silliness. Just for brief clarification H F Mudd is a character in Star Trek TOS. Not that that helps much.

It would seem that among the many beliefs in the BPS system ' saying words out loud is what makes reality' is another. Others outside that bubble might refer to these as false reality beliefs.

I'd also like to point out that while the government (Federal) scrubbed the previous guidelines for ME they have yet to address the void left there so that there is currently no guidance. And having read the comment below the blog I agree with Andrea that so far it looks like the formal...

Thank-you to David Tuller and Steven Lubet for not letting this slide and calling these haters out. It must be frustrating at times to feel you are playing whack-a-mole. This would seem to be one of those moments when silence speaks volumes. Just for info: McMaster historically* has been the...

I would say by my brief look that there is some reasonable looking stuff on there. I think it's good to be aware of new players in advocacy and to mind and assess what they are doing. There is so little oversight and I have stopped believing in the goodwill of any org until proven otherwise...

I can't find who funds them but they are based in the US with organisations they trademark around the world. So could be any number of places including (as an example) Bill and Melinda Gates Foundation and possibly pharmaceutical companies. I add the pharma because they say their management have...

https://www.ghlf.org/ This is one of those times when I think it best not to say what I think.

For me I see a problem even if Peter White is correct in that some people have come round to considering views of ME outside the BPS bubble. We still have the problem of research. As we've seen recently the BPS have been stepping up their game in order to try and expunge their horrible track...

I have fatigue at times along with illness symptoms. How I think about this though is that fatigue for me is secondary to the fact that I don't sleep well / have insomnia. So it's this (I don't know is insomnia a symptom?) that is the focus of how I feel. When viewed that way it focuses on...

One change I think would be that store shelves started to stock foods from farther away. This might seem quite innocuous and maybe it is but it requires a different way of harvesting and transporting food while keeping it fresh. And people local to where this food is imported from do not eat...

Also on the same topic: Julia Belluz April 14 2021 https://www.vox.com/22369734/long-hauler-covid-vaccine

If it would only prove to be inconvenient though.