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  1. Snowdrop

    Michael Sharpe: Mind, Medicine and Morals: A Tale of Two Illnesses (2019) BMJ blog - and published responses

    She seems rather hopelessly confused. Learning vague conceptual models and vaguely applying them without considering any evidence or displaying any common sense ends with this sort of thinking. It adds nothing but no doubt makes the writer feel good. Better to get to know sick people well over...
  2. Snowdrop

    Lightning Process study in Norway - Given Ethics Approval February 2022

    L Landmark's perseverance alone is evidence of her allegiance to this 'therapy' model.
  3. Snowdrop

    CBT repackaged or a novel treatment? The Lightning Process compared with UK specialist medical care for paediatric [CFS], 2021, Anderson, Parker et al

    My personal wish would be that IACFSME were dismantled. IMO they are worse than useless. It's infuriating and there isn't even a word for the level of insulting to people with ME/cfs. We don't need THIS.
  4. Snowdrop

    Neuroimaging in Functional Neurological Disorder: State of the Field and Research Agenda, 2021, Perez, Carson, Edwards, Hallet, Stone et al

    This group seems to be putting in more effort than some others. I'd like to say though I don't know much about this I don't think that neuroimaging will turn out to be the definitive tool for understanding the pathology of most or even all MUS. And they will never be able with this model to...
  5. Snowdrop

    Experience with Lightning Process course 2008, Norway

    @Parsnip Many thanks for taking the time to document all that you went through. I am horrified and angry on your behalf that you had to experience such cavalier disregard for your dignity, rights and well-being. It is so very sad to know that there are so many deluded people out there...
  6. Snowdrop

    Lightning Process study in Norway - Given Ethics Approval February 2022

    Somebody's throwing their rattle out of the pram/carriage again.
  7. Snowdrop

    AHRQ Diagnosis and Treatment of ME/CFS: addendum, 2016, Smith et al

    Just tagging @Medfeb and @Denise who may have a clue.
  8. Snowdrop

    Efficacy of therapist-delivered transdiagnostic CBT for patients with persistent physical symptoms in secondary care: an RCT, 2021, Chalder et al

    I like that he makes the point that continuing to fund this type of research by the usual suspects is all money down the loo (although he words it differently). If only we could get through to the funders of crap that money wasted does not provide the benefits they imagine.
  9. Snowdrop

    Lancet letter: Long COVID has exposed medicine's blind-spot, 2021, Burke and del Rio

    One problem they have as I see it is that psychosocial issues must apply then to all illness. Yet so many illnesses are made better or cured with purely biomedical means. The only nod to pyschosocial would be as support. The Lancet is being disingenuous. Which is not at all helpful except as...
  10. Snowdrop

    Who was it that said being in support groups leads to poor outcome?

    This whole idea of bad outcomes from being in a support group seems truly odd. Perhaps I'm getting the idea from popular culture but don't people who present with mental health issues generally end up in a group setting for support while also getting individual treatment? I always thought this...
  11. Snowdrop

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    I don't understand the reference. It was a Canadian initiative. I just happen to be from Toronto.
  12. Snowdrop

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    I only have two vague memories on events that have lead to exercise as the cure for all. On this side of the pond the first is the Kellog's cornflakes guy around the beginning of the 20th C. He was a zealot of a then nonexistent wellness industry and considered cornflakes to be a health food...
  13. Snowdrop

    BPS attempts at psychologizing Long Covid

    A bit silly perhaps but I'm going to quote myself for emphasis and again point out that if there was indeed any truth to their point of more long-covid because of advocates warnings then they would by that same reasoning be guilty of causing hysteria among people leading to greater mental health...
  14. Snowdrop

    Lightning Process study in Norway - Given Ethics Approval February 2022

    That would seem to me to be a bogus argument. And haven't the anti-vaccinination been withdrawn even? A study is either sound science or it is not. The real problem for the BPS people is that there is no way for them to do anything robust. The mention of all these things are not the same...
  15. Snowdrop

    Lightning Process study in Norway - Given Ethics Approval February 2022

    A bit tangential but I'll park it here. This is one practitioner's explanation of who is "suitable" for doing LP. Ian Cleary from Australia says (among a page of other things): If you feel doubtful, cynical or just want to give it a go to see what happens, then now is probably not the right...
  16. Snowdrop

    United Kingdom: Science Media Centre (including Fiona Fox)

    For me the salient point was actually made by Simon Wessely himself when he said in his email: If people had given different opinions they would have included them. They always do. The facts are that no one on the list did. Yes, well, if you compile a list of people for whom you know will...
  17. Snowdrop

    BPS attempts at psychologizing Long Covid

    With the BPS cabal having spent the past year using every opportunity to opine in public that people are suffering from having to be isolated -- well how do they know they are not causing all this suffering by endlessly pointing it out? Seems to me there's a double standard here.
  18. Snowdrop

    In progress: Measuring Health in Children with CFS/ME: Refinement, application and evaluation of new PROM (PEACH) in routine practice, Crawley et al

    And of course the NIHR is a labryinthine organisation that reports to the Department of Health and Social Care. There seems to be an NGO liaison group that is intermediary to NIRH and D of H: https://www.lgcgroup.com/health-research-programme-management/ Under the 'Who we serve": We manage...
  19. Snowdrop

    Deep spatial profiling of human COVID-19 brains reveals neuroinflammation with distinct microanatomical microglia-T cell interactions, 2021

    I particularly liked that they: Much more effective than the ever present questionnaire of the BPS. Make that brain stem give it all up I say.
  20. Snowdrop

    Event: Depression (and anxiety) in Paediatric Chronic Fatigue Syndrome (CFS) - Dr Maria Loades, 28 Jan 2020

    So, it looks like the end date has been extended. Am I reading this right?
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