I had Raynaud's for maybe 5 years or so. It started out mild and became increasingly more often until it stopped altogether.
It was after that that I would get issues such as fainting (or the slow version where you feel your vision narrow and if you sit with head down you can avert fainting)...
Probably not on point for anything, just idle musing.
Here's the scenario I picture when I read PH et al respond to challenges to their world view.
They would like for things to remain the same or even better go back to how things were (when they felt unchallenged). Going into the office...
Xavier Gimeno is unlikely to change his mind. His is a belief based on emotion not likely amenable to reason. The emotional basis of the belief is an attachment to a conceptual system. It cannot be tested for weakness only defended.
ETA: a thought on clarification. Conceptual system here...
I'm not on twitter but it would be good to inform the press who write on health issues.
@kellygrant1 (The Globe & Mail)
@sharon_kirkey (National Post)
and it could be useful to tag the University Health Network (Toronto) @UHN
I found this interesting as I'd never heard of it:
https://polybio.org/
Our Vision:
To take current research, identify important existing trends, and translate the data into information that doctors can use in the clinic to help their patients. This includes the development of new advanced...
In the media of late the BPS cabal rely over and over on saying that 'some people benefit, we know this from clinical experience'.
Yet they have never answered the question (unless it's in the null PACE results) if the health of the people treated would have improved anyway naturally simply...
The proponents of BPS therapies need to respond to the possibility that their recovered patients would recover even without their treatment. Because in times past that's exactly how it worked.
I wonder how many of these trials will be needed going forward? One hundred? Two thousand?
Given that we know some people remain ill and CBT/GET have been debunked I wish gov't and other funding bodies would put money aside to research aetiology and cure or at least a treatment that actually...
https://radforsk.no/our-story/
INVESTMENTS AND COMMERSIALISATION
Today Radforsk Investeringsstiftelse acts as a dynamic player working in every part of the research–to–commercialization eco-system – all the way from initial research results to listing companies. Since its establishment...
I would certainly like to know more about the CFSAC (Solve) recommendation. How recent?
And why, were the previous guidelines an issue?
Sorry, if I read anything about this previously I have no memory.
Thanks @Trish.
I used up all my energy with my pointless rant and there's a lot to take in there.
I take it from Denise's response the difference in tone is because the key questions have changed?
It just all sounds like politics to me but can't quite grasp why or for who's benefit?
A pointless rant:
As usual this article is written in a way that makes sense to the writer and colleagues from their outside perspective. Taking the standard wisdom of the need for exercise and finding a way to make it work for those poor people with PEM (which now is a new buzz word for them...
In 2021, we call on the global evidence community to share their experiences, expertise and stories on infodemic management, including facilitating accurate knowledge translation; knowledge refinement, filtering and fact-checking; building eHealth/science literacy; and monitoring, infoveillance...
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