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Those societies acknowledge IENFD and biopsy as a valid method to diagnose SFN. That was my argument and not sure what your counter-argument is. No testing method is perfect. You can test SLE in 2 labs and you get differences. EMG can vary a lot based on who is performing it too, they will still...

Yes it drops by age, this is why the reference range is for age groups, 20-29, 30-39, 40-49, 50-59, 60-69 etc, and for females and males separately. Male have significantly higher nerve density to begin with but even in Europe, labs pay attention to correct ref. ranges. I agree it seems vague...

I cited only OMF, and they dont acknowledge SFN only because Whitney doesn't have it, how is that relevant. Anyway, as I said if ME can be diagnosed from a set of symptoms, SFN should be too (we're just grateful it doesnt have to be), but it can, and certainly over 50% of MECFS patients complain...

SFN, SjD, POTS, and well MECFS i would fit with CNS PEM, for the physical I cant be sure as POTS limits my mobility and I never push through that due to limb weakness.

I was only expressing my opinion, not trying to be useful with every word I say (although I was trying to be useful with most of them)

Nobody is saying everyone with MECFS has SjD, thus, of course not 40% of ME pts will have Ro, and also, among neurological SjD it is higher prevalence of seronegative, as well as among younger SjD which is MECFS / SFN group anyway. From what I see, some people don't want to know the truth and...

Sorry but I have to laugh at this, so everything is unscientific, adding SFN to the SjD criteria, the diagnosis of SFN too, everything is unscientific except the strict arbitrary verbal definition of what MECFS is, worded in English language. (with the additional problems of translating it to...

According to the EULAR criteria for neurological involvements of SjD: it wouldn't be a misdiagnosis. Per their criteria SjD can cause CIDP, MS-like and NMOSD/TM and TN (Trigeminal neuralgia ) - would you say TN is a misdiagnosis just because SjD was causing it? Also other complications in other...

They literally dropped primary Sjogrens and yes it's called a disease from 2025. I stopped reading after that because we want to be up to date and not continue to spread misinformation. Another thing that I hate is that I have to explain the obvious; why it matters if someone who has SjD and...

This is not math. and you're again making flawed argument that MECFS and SjD are 2 comparable variables, while SjD is multi-variables and MECFS is a single one. I am not making circular arguments, you're letting your subjective bias influence your judgement, putting too big emphasis of PEM (a...

From the new ESSDAI update from the EULAR. Mind you, Johnathan Edward was claiming in 2025 or 2024 that SjD has absolutely no relation to SFN, in a response to some of my posts that you can easily find. So the rheumatologist society is claiming SjD can cause as serious and severe disease as...

No, I didn’t say that — I said it can cause it, because it’s listed among the neurological complications of Sjögren’s on the ESSDAI (both PNS and CNS involvement). ME/CFS is very close to dysautonomia, and we don’t even know whether PEM is just a symptom of dysautonomia that some people have and...

I find it humorous that you would ask for proof that anything causes MECFS when we don't know what MECFS is AND WE CAN'T MEASURE IT. This is asking me to solve the MECFS puzzle, and because you know I cant solve it you dismiss my claims. The only proof that you cant Google directly yourself...

But that cant be proven so if someone has Sjogrens you cant automatically claim they misunderstood what's PEM and think they have it but if they don't have Sjogrens then they automatically do have MECFS and If i tell that person they don't have MECFS I must be gaslighting them.

Because Sjogrens is caused by B cells hyperactivity SOMETIMES causing numerous neurological antibodies , high total IgG etc, and MECFS is sometimes a severe complication, same like CIDP or NMOSD is a "rare" complication of Sjogrens disease. (or not so rare, depends which research results you...

If people with disease X can't claim they have PEM and we wont believe them, why people without disease X can claim they have PEM and based on that claim we can diagnose that group as MECFS? So you're gaslighting over here people who don't have MECFS.

But who is even defining MECFS as a disease if you cant prove you have it ? It's a set of symptoms for now and you can't claim some other disease can't cause it. You're trying to claim thats 2 equally loaded variables - Sjogrens and MECFS. This stems from your lack of knowledge on the...

Clinical proof is patients who have Sjogrens developed MECFS too Its not 2 variables. Sjogrens is multiple variables, MECFS is one. Read about neurological complications of Sjogrens before making further claims. Also about immunological profile of that disease. For you this topic seems...

I didn't say Sjogren's causes MECFS; I said it can cause it in patients who have Sjogren's, because MECFS is a set of symptoms after all. I mentioned hierarchy because correlation-causation doesn't apply if one illness has the mechanism to explain the other, and the opposite is not possible.

This shows you don't really understand what Sjogren's disease is, and that is why we have this back and forth. it is no longer called a syndrome, btw. One of the hallmarks of Sjogren's is high total IgG, so an increasing number of autoantibodies too with the progression, with a preference for...