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I don't think we can say for sure that the mitochondria are damaged, but we can say that energy production is impaired. Its the nature of that impairment where the confusion lies. We literally don't know why, we can only measure it such as through CPET. This means the problem could be at many...

On hidden rotting food I have no way of knowing. It could be either or both. This is stuff I have not noticed, so I don't know how long its been there or what my level of contact was.

There are cases where mortality was ignored. For example, antiarrythmia drugs. These were touted as successful as they treated the symptom well. Long after, someone did mortality stats ... overall mortality, that is death, was increased. They worked, but you died more. This was one of the case...

A point I have made many times over the years about mild ME is this. Typically you have to lose substantial functional capacity to be diagnosed, and typically this is a loss of 50% capacity, just to be labelled mild. A loss of half of what you can do is not mild by community standards.

Yes, but his stage four involves multiple organ failure, people close to death. Avoiding stage 4 is the goal.

Paul Cheney has long used the progression idea, with stages 1 to 4, with stage 4 being potentially fatal.

We might consider the use of the phrase "sub-clinical" for those in apparent remission, particular if remission is considered because they fall below the threshold for diagnosis. This does not mean they are not sick, as Dr David Bell showed with ten patients in "remission". Its just they no...

I have severe OI but also worsening high blood pressure. Its much more likely to be too high unless I accidentally took a double dose of blood pressure meds.

I have had one more. If there is any rotting or moldy food about, like fallen down behind something, then I can get something very like PEM.

I recall one occasion where I was in a crash and trying to get home. I moved at a very slow shuffle, rested regularly, and could not pick my feet up at all. At one point I had to use an elevator rather than a few steps. Even one step was too much.

I don't think its only impaired energy metabolism, though that is a large component. We are still learning what it is. However this is not just about impaired energy in our muscles, but many tissues in our bodies, and not all identified yet I suspect. I am not sure about the magnesium, but I...

In the small number of cases where I talked to other patients about this, stimulants can help if used rarely to assist coping with big events. Continued use is devastating. I suspect this might be due to feeling like you can do more and so pushing yourself harder. I also wonder if enough...

Oops. Then maybe I added to it by putting a link on my Facebook page. Mea culpa. Still not removing the link though.

The odds are every single lead will fail. Then one wont. We don't know which lead that will be, so we have to pursue them all.

I don't think there is much doubt that post viral fatigue and ME share similar causes. That does not make them the same thing. Indeed I think ME itself is most likely at least two different but very similar diseases. CFS of course is many diseases, maybe hundreds, especially if you include the...

Not Australian, they are from various sources over the years on post viral fatigue. Its considered a self limiting condition, and this is generally known to doctors. A great many people get immune induced fatigue from a virus, which then goes away. How fast it goes away is the issue. With ME we...

From the report - Back then most cases of diagnosed CFS were probably just post viral fatigue. Fukuda is not a great definition either, nor is any where PEM is optional or not needed. In addition, that would be by seven years, not patients sick longer than seven years. That is consistent with...

I have been getting funding for home support for about a decade now. In two months that expires, at the end of the financial year. The funding program is cancelled. It is presumed that anybody needing help is on NDIS or can get NDIS. I suspect that this notion of 99% recovery is conflating the...

It always was, at least in the last decade and I suspect for several decades. They practice medical politics a lot more than medical science. As I have said for years, its more about persuasive rhetoric than logic and evidence. Clearly its not about good science. Its about who they can convince.

That is my understanding. What they see now is that its larger than they first thought.