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  1. Ryan31337

    What can a CPET do to diagnose ME, OI, mitochondrial disease, heart conditions, etc.?

    Hi @Sasha, Here's a graphic that I find useful: That is taken from an excellent, albeit heavy-going review here: http://circ.ahajournals.org/content/122/2/191 If you want a briefer overview, I found this quite useful (it lists normal ranges too)...
  2. Ryan31337

    PEM from too little activity?

    With high-flow POTS its been noted that some people get hot extremities. Don't read into that too much though, just one possibility. Still think a good cardiac/OI workup would help you though.
  3. Ryan31337

    Allodynia - Painful skin, general sensitivity

    I suffer from allodynia from time to time, I suspect its related to either a (re)active infection or postherpetic neuralgia. For me it often only effects 1 side of my body at a time. Sometimes the scalp, at other times I've had it on arm or thigh. I guess it would be classed as mechanical...
  4. Ryan31337

    Melatonin

    Years ago I tried melatonin supplements, I found they got me off to sleep quite well but I would often then wake up in the middle of the night, almost like a rebound effect. More recently a sleep study showed I had very poor quality sleep, not uncommon in POTS patients, so was prescribed...
  5. Ryan31337

    PEM from too little activity?

    I have pretty much the same experience as @JaimeS - generally on a good, PEM free day I'd feel lethargy and brain fog set in after just a matter of hours of forced inactivity. I found that dragging myself out for a gentle swim was a great way to clear those cobwebs. Aggressive resting does not...
  6. Ryan31337

    PEM from too little activity?

    I go along with this train of thought and would expand to say that lack of orthostasis could be having negative effects on your blood volume and overall function as a result. Have you been investigated for OI problems like POTS? I am very negatively affected by lack of activity and its not...
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