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  1. Lisa108

    Tetrahydrobiopterin

    rs 841: AA Dang, I just wanted to change my avatar... ;)
  2. Lisa108

    Tetrahydrobiopterin

    rs4411417: CC rs752688: TT rs8007267: TT rs10483639: CC rs3783641: AA rs8007267: TT rs10137071: TT rs6730083: AA rs1876487: CC So that is 8/9 for me?
  3. Lisa108

    Charité Berlin: "1st Meeting on Chronic Fatigue in Immune-mediated disorders", November 21/22 2019

    I contacted the Charité about this meeting, it is a "non-public event for invited guests". Got no answers about streaming or publications afterwards. The program looks quite interesting.
  4. Lisa108

    Sweden - RME news

    Time zone converter here
  5. Lisa108

    Dialogues for a neglected illness - videos on experiences of people with ME (funded by Wellcome Foundation)

    Transcript of part two. Please see end of document for screenshots of the graphs.
  6. Lisa108

    Dialogues for a neglected illness - videos on experiences of people with ME (funded by Wellcome Foundation)

    Transcript of part one by a non native speaker please feel free to point out all my mistakes.
  7. Lisa108

    Dr Nacul speaking tomorrow (Saturday), livestreamed

    Time Zone Converter here
  8. Lisa108

    #MEAction Advocates will Speak at Stanford MEDx Conference this Weekend (Sun 22 Sep 2019)

    (Hope I got that right, please check converter at the end of post) UK: SUNDAY, 10.30 pm Germany, Sweden, Norway, France, Spain, etc : SUNDAY, 11.30 pm Russia, Moscow: MONDAY, 00.30 am Japan, Tokio: MONDAY, 06.30 am Australia, Sydney: MONDAY, 07.30 am Australia, Adelaide: MONDAY, 07.00 am...
  9. Lisa108

    Viewpoint: “It’s All in Your Head”—Medicine’s Silent Epidemic

    RE: having phantom pains in a limb that never existed Thanks @Andy for finding the article, it links to this paper from 2012: https://sci-hub.se/10.1080/13554794.2011.556128 @Jonathan Edwards
  10. Lisa108

    Viewpoint: “It’s All in Your Head”—Medicine’s Silent Epidemic

    I very much doubt this. Could you please provide a source? Thanks. ETA: Never mind, I found one, even by V.S. Ramachandran. Seems like our brain may have "an innate, hard-wired template for body image that is independent of what we see and feel".
  11. Lisa108

    News from Germany

    Great radio report but one caveat: Patients can not simply go to the me/cfs medical departments in Berlin and Munich. The Charité accepts only patients from Berlin and Brandenburg; Munich is for children with ME.
  12. Lisa108

    Metro UK: “You Don’t Look Sick” Weekly Series

    Another one: ‘Having M.E. is like you’ve ran a marathon with the flu and were beaten up afterwards’ From the article:
  13. Lisa108

    UK: Capita seeks to reverse 'reputational damage' after death of (agoraphobia & fibro) claimant (from brain haemorrhage)

    Capita PR guys meeting: "Wonder how we could present our company as even more incompetent and greedy..."
  14. Lisa108

    Use your Amazon Smile to fundraise while shopping

    From Germany, one can use Amazon Smile to donate to "Deutsche Gesellschaft für ME/CFS" or "Fatigatio". There is a charity called "OMF International Deutschland", but this is the "Overseas Missionary Fellowship".
  15. Lisa108

    Sci-hub blocked in Sweden

    Some addresses are blocked in Germany, while this one works (for now).
  16. Lisa108

    Tinnitus Poll : Making a distinction of subtypes

    Constant bilateral tinnitus here. Loudness increases with onset of PEM, like a (more than usual) sore throat.
  17. Lisa108

    Researchers propose deep trawl of DNA to help uncover the causes of ME/CFS (Simon McG blog)

    Could pwME share their already existing WGS-data?
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