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  1. Lisa108

    Press release in Germany: three deaths due to Borna disease virus

    It seems like the Robert Koch Institute had a research group (led by Dr. Liv Bode) on Bo-DV1 since the early 90's. Dr. Bode worked in cooperation with Prof Hanns Ludwig (Freie Universität Berlin). They found the virus in blood samples of blood donors and of psychiatry patients. The Robert Koch...
  2. Lisa108

    Press release in Germany: three deaths due to Borna disease virus

    I think it was the other way round: three organ recipients, who received their organs from the same donor, became ill with encephalitis. Two of them died. One survived. So they concluded that the donor must have been infected. [blue added for clarity] The "Deutsches Ärzteblatt" (an official...
  3. Lisa108

    I've gone nocturnal again :(

    Hi @Arnie Pye ! Just a thought - melatonin is thought to be the trigger of "winter depression" (seasonal affective disorder?). Because of the missing light during daytime in winter, melatonin is not broken down sufficiently. Result: depression. Now with your sleeping pattern you simply might...
  4. Lisa108

    Press release in Germany: three deaths due to Borna disease virus

    @Hip Thank you! Very interesting input. As I understood the press release it was the first time at all that an infection with Bo-DV1 in humans could be proven. The older findings in psychological disorders were contested. Well, this seems to be a german view only. The ECDC says 'Infection with...
  5. Lisa108

    New German guideline for ME published today

    But why did Fatigatio decide to publish his letter anyway? Because it is saying that Mrs. Klasing - got everything right - did everything right - is a victim of unfair critique voiced by a minority (of morally reprehensible docs and patients). Given the fact that the letter is written by a...
  6. Lisa108

    New German guideline for ME published today

    I think 'tone' is the scientific term here. I also found 'tonus'. In German we are talking about 'Muskeltonus'. 'Muscle tension' (or 'painful muscle tension') is imo what we call 'Muskelverspannung'. Every muscle has (even at rest) a certain degree of tonus. This is called 'Ruhetonus' in German...
  7. Lisa108

    Press release in Germany: three deaths due to Borna disease virus

    Sorry for the long post. Translation by Google and me. Mistakes and bold/italics by me. http://www.zeit.de/news/2018-03/27/drei-todesfaelle-bornavirus-fuer-menschen-doch-gefaehrlich-180327-99-652639 Berlin/Greifswald-Riems (dpa) Three patients in Germany have died as a result of a viral...
  8. Lisa108

    Stem cell transplant 'game changer' for MS patients

    From the Niche blog that @TrixieStix linked above: Stem cells for MS. Media Grade B. From the BBC comes this article by Fergus Walsh, “Stem cell transplant ‘game changer’ for MS patients.” This sounds exciting. It’s a report on a presentation at a meeting rather than a journal article. There’s...
  9. Lisa108

    BACME website

    "Once a diagnosis has been made, patients should be considered for further evaluation to see if they would benefit from the evidence based treatments (CBT – cognitive behaviour therapy and GET – graded exercise therapy)." (page 4, bold mine) Yeah, we know about that evidence base...
  10. Lisa108

    Stem cell transplant 'game changer' for MS patients

    The following information are from the link in BurnA's post. Not for all types of MS, though: "They all had relapsing remitting MS" "The treatment uses chemotherapy to destroy the faulty immune system. Stem cells taken from the patient's blood and bone marrow are then re-infused." So it was...
  11. Lisa108

    Immunoadsorption to remove ß2 adrenergic receptor antibodies in Chronic Fatigue Syndrome CFS/ME (2018) Scheibenbogen et al

    "After the 5th IA cycle all patients received 25 g IgG i.v. (Octagam, Octapharma)." "(...)levels of total IgG and the specific IgG against tetanus and pneumococcal polysaccharide after 3 and 6 months remained unchanged." But also: "After IA both patients deteriorated following a respiratory...
  12. Lisa108

    Personality and Perfectionism in CFS, 2008, Chalder & Deary

    I just accessed the whole study. Just found more tripe, although reading only superficially... I learned a new word, though: gregariousness. Sounds cool! CFS patients failed on that, too... Now, wait! There ARE true gems in here: "It is unsurprising that someone with fatigue would be both less...
  13. Lisa108

    Personality and Perfectionism in CFS, 2008, Chalder & Deary

    @arewenearlythereyet That was a tough one. Nice pun, though.
  14. Lisa108

    Australian radio program: Jen Brea & Panel Discussion

    Maybe doctors in Australia are better at diagnosing. Maybe the causative factor for ME is more widespread in Australia. Maybe certain genetic predispositons are found more often there. Maybe none of this is true and it's "Zombie stats", like @Lucibee said.
  15. Lisa108

    Personality and Perfectionism in CFS, 2008, Chalder & Deary

    "The CFS group was significantly more fatigued, anxious and depressed than healthy controls." [italics mine] Surprised, anyone? :banghead: "Healthy and unhealthy perfectionism were positively correlated in the CFS group, but not in the control group." Maybe this is because the CFS group...
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