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    Mad Cow Disease: The Great British Beef Scandal

    The problem with pesticides is that the acceptable levels are based on individual pesticides. From sowing to crop there are a multitude of chemicals used- the combination and its effects seems to be under researched. For example potatoes locally can be sprayed with different chemicals up to 32...
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    Weighted blankets

    Bamboo is good for moisture control. My daughter's s memory foam neck pillow has a bamboo casing which seems to help. Wool is also great at " wicking". But perhaps given weight issues, better for winter.
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    Study finds psychiatric diagnosis to be ‘scientifically meaningless’

    Very much so. My daughter had cbt via CAHMS for anxiety. The second session was a fishing trip for early childhood trauma which she found very upsetting. The therapist simply could not accept what she was telling them .CBT was a disaster and left her no better for it and thinking she had "...
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    Post-Exertional Malaise Is Associated with Hypermetabolism, Hypoacetylation and Purine Metabolism Deregulation in ME/CFS Cases, 2019, McGregor et al

    There were a few threads re BCAAs at the other place. Many used them for "PEM busting ability"
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    BMJ Archives of Diseases in Childhood: ''Editor’s note on correction to Crawley et al. (2018)'', 2019, Nick Brown. (SMILE LP Trial)

    For a population group who are supposed to benefit from higher levels of protection, when it comes to paediatrics, careers seem to trump the health and wellbeing of children. Has there been a precedent in English law along the lines of Montgomery v South Lanarkshire Council? In light of...
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    Weighted blankets

    Knitted cotton blanket, some are patterned so will have weight while still having lighter areas ( maybe not so warm?)
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    JAMA -"Advances in understanding the Pathophysiology of Chronic Fatigue Syndrome" by Anthony Komaroff

    Don't t despair. Although I feel that there are many routes to the same end state, there will be common pathways which may help define subsets. I think we are beginning to scratch the surface as the technology now exists and is evolving to enable scientists to dig a bit deeper. If we can...
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    ME Epidemiology - prevalence and peak ages of onset

    I wish I had a clue. Flinging a few things in perhaps testosterone drops off a cliff for some rather than starts gradually. That the lack of cholesterol in diets precludes productions of sufficient pregnenolone Impact of pesticides on hormonal synthesis - most pesticide safety use...
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    ME Epidemiology - prevalence and peak ages of onset

    Testosterone starts dropping in 30s. Same biochemical impacts hold re synthesis pathways, cofactors and deficiencies. Perhaps the low cholesterol diet is responsible for other impacts other than the rise of T2 diabetes.
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    MicroRNAs as biomarkers of pain intensity in patients with chronic fatigue syndrome. Al-Rawaf (2019)

    I would agree I would agree re pain tolerance. My daughter finds it difficult to compare pain / " meh face" scores on a diary app she has as her pain tolerance has changed over time, probably as the nature and degree of pain has changed. People become accustomed to a background pain level...
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    ME Epidemiology - prevalence and peak ages of onset

    I know I do not have a science back ground but HORMONES!!! Puberty and pregnancy have huge hormonal shifts which also require co factors, pathways etc. Perimenopause can also start in 30s with shifts in estrogen production. Iodine deficiency is seemingly common, B12 and magnesium are required...
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    Want to learn about neurology

    When I jumped in at the deep end for uni a few years ago, I tackled the module I would have felt least confident with ( electrical systems) on the basis if I passed that I would cope (!) I used YouTube and Kahn Academy for a lot if the basics as I found 10 min videos were ideal for me in "...
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    Introducing #MEAction’s 2019 ME Research Summary

    I think my point is more re research in general. Chris Ponting only got a hit on a specific non hereditary gene as he looked at females only - within a mixed cohort it would perhaps never have been identified. I think there is the potential for more differences. Given differences in immune...
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    Blood volume and red blood cell volume in ME/CFS

    Given the different manifestations between Male and female from recent metabolonic/ protoeiomic studies, is there a way to break down research by gender? It may just throw up something?
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    Michael Sharpe: Mind, Medicine and Morals: A Tale of Two Illnesses (2019) BMJ blog - and published responses

    Is this simply to expand a fan base; we seem to be moving forward on basis of a personality cult.
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    Physios for ME

    Sadly our referral was for GET. Physio was nice but simply did not have a clue. Completely unrealistic prognosis and conflation with chronic fatigue. No knowledge of OI, low blood volume, comorbidities. I really hope that you can turn things around. My daughter would benefit hugely from...
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