Search results

Has something like this not been done for GWI? Broderick is known for in depth " fancy math" Otherwise, outwith psychiatric conditions, my guess would be some of the established/ better funded research diseases - cancer/ arthritis/ alzheimers and perhaps epilepsy?

South Ayrshire in Scotland . Forwarded to a mum struggling to get appropriate provision to use at a meeting over the summer in another Scottish Council area.

The everlasting lightbulb springs to mind...

Shared with our council quality improvement officer who is forwarding to heads and SEN heads. It connects well with the Educate ME project in Scotland which tried to provide supportive info for teachers and highlighted the key role that teachers can play. Formal launch later this year but...

indeed. Not a Guinness drinker but OH used to have business trips to Eire and enthused on " the real stuff". Perhaps a qualification to a badly poured pint, but that would be a waste (and a different metaphor)

Anecdotal The chemistry lecturer at uni has commented that he sees glandular fever symptoms reactivate every year at exam time.

I think a true Irish Guinness might just touch on the depth and density of the froth......

Perhaps @PhysiosforME would be interested in this. Not exactly detached, but if looking to understand and reframe support it might be a worthwhile exercise. You have to both know and understand what doesn't t work and why before you can offer anything effective Note the ecent paediatric...

our last hair test had high mercury and aluminium - better ratios of calcium/ potassium etc; my assumption was that improving methylation had released some of these from tissues - perhaps selenium is also playing a part.

Scroll down to the paragraph immediately above " a common theme" near the end. High mercury and uranium due to low selenium https://www.healthrising.org/blog/2019/04/15/nih-chronic-fatigue-lipkin-davis-prusty-oh/

Sorry @DokaGirl , I missed this reply. From memory he has recently said that they have found higher levels of mercury in ME patients. I'll try and find a link

Interesting stuff eta our paediatrician thought mito diseases only applied to tiny babies....

This .

Correlation and causation again ? Are world views so narrowly defined that the obvious is excluded . A few funny graphs http://www.tylervigen.com/spurious-correlations ETA website - removed link site added actual site

I go wonder if this is a hormonal symptom that may indicate issues with liver? Synthesis and bio transformation of many steroid hormones is part of liver' s job, and the liver ( I read somewhere) does a lot of housekeeping at night when we are supposed to be asleep. There seems to be an issue...

Whenever did objective evidence get in the way of a well reinforced poorly defined construct....particularly one with an asymmetric power balance and a sprinkling of messiah complex

Can we put the Nottingham exercise researchers in touch with these ones?

My daughter's favourite retort to those who think paralympic athletes reflect the aspirational goal for every disabled person - "so you're modelling yourself on Usain Bolt?"

Yes they are trained in massage, but this tends to be either for conditions that have a noted benefit ( not really part of the ME playbook) , or from a private physio. A few physios here work part time in NHS and have private businesses . Massage was beneficial for my daughter but took too...

Perhaps it was an assumption that school records would be made available ( assumption of a lot of things underwrites world view here) Or perhaps it's the impact of GDPR kicking in between start and end. Or both?