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Yeah, that's what it seems like it was initially developed for. But they have now supposedly trialed it on long COVID patients, from what I understood specifically for neurological symptoms. Let's say "off-label". Paper will be released soon, according to him. He did not specifically mention...

Hey guys, I'm wondering if there's anybody that has an opinion on High Amplitude Low Frequency–Music Impulse Stimulation (HALF‐MIS) therapy, specifically for long COVID. I was recently contacted by a neurologist that has researched this over the past 30 years and just finished a RCT for long...

https://clinicaltrials.gov/study/NCT06847191 Anybody have more info?

Nope, but there are symptomatic treatments used in the clinic that can improve quality of life. But I suppose it's a personal choice to either wait for (potentially causal) treatments that have passed robust trials, or to try improving QoL in the meantime with therapeutics of lower quality...

I see your point now, thank you. Say you have a patient showing multiple symptoms of POTS but lacking PEM, for example. In this case, from my understanding, it wouldn't be correct to attribute their symptoms to ME/CFS, right? Hence, I do see merit in having a name for it. Regarding the...

Thanks for expanding on your previous comment, it made me understand your point much better :)

Nor have I said that anybody was doubting LC, I believe you have misunderstood my sentence (which is about POTS as a co-morbidity of LC), mate. And regarding the second point, I addressed it above, regarding his ignorance about exercise and ME and exercise as a therapy for POTS per se?

Are there any other anecdotes here? I took a 10 days course on 4 g/day and subjectively felt better during - but no different after.

I think we might be talking about different things here? In my response to "POTS is a doubtful concept" I was considering POTS as a set of symptoms (as linked above) that occur as part of ME, LC and other illnesses. Not as something that is imperatively and solely linked to ME. And in cases in...

Along the same lines of your argument, you will have to forgive me that my energy I too limited to spend it on regurgitating the intricacies of POTS. I am not sure whether I misunderstood the previous poster or not, but I cannot spend my energy on discussing whether a set of symptoms that I (as...

Nice presentation by Prof Fedorowski on POTS, discussing that it's not purely tachycardia as has been said for many years, in case you're interested and curious :)

I wouldn't fully discard the idea of them being allosteric modulators - which could fit POTS quite nicely, wouldn't you think?

Hmm, I am quite sure she mentioned that they believe they had too soft outcome measures (that also did not account for natural fluctuations in symptoms severity) and thus they are using more objective ones in their new trial. Maybe it was at some other point during the conference... One thing I...

I was not suggesting that it is or it isn't placebo, sorry if I came off wrong here. I was merely interested in their opinion :) Regarding the study you shared, the main author recently shared (at 31:54) that they believe that their "soft" outcome measures (as you also address with IA) was the...

Thanks for your comment. No doubt about that, that's why I mentioned the talk from University of Erlangen in which they state a predisposing factor is needed for the antibodies to gain function. In healthy patients/normal people without predisposing factors, they would not cause problems. They...

Thanks for your insights - would you mind commenting on the following? It doesn't seem to be as easy as "auto-antibodies = Long COVID", that's for sure. Also, the autoantibodies that are most commonly discussed are the ones against vasoactive receptors such as adrenergic and muscarinic...

They haven't looked specifically at patients with increased autoantibodies from what I can tell