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This one is widely used by the psychosomatics in Norway, when they want to point out that there is a harmful “ME society” on net https://www.researchgate.net/publication/269394738_United_We_Stand_Framing_Myalgic_Encephalomyelitis_in_a_Virtual_Symbolic_Community

I have not checked this out, but Vogt use this study to argue that believing it is physical make the prognoses worse Cairns, R. & Hotopf, M. A systematic review describing the prognosis of chronic fatigue syndrome. Occupational Medicine 2005;55:20–31 Edit; and this Barsky, AJ. The Iatrogenic...

Yeah, that is something to wonder about. But there are examples where low dose does work for some people with ME, like low dose nalthrexone, and gammanorm which is low dose IVIG as I understand it.

Thank you all. It is a good study for us, it documents that we are maltreated.

Has it been retracted or not?

What does this mean? https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5654014/

I see it has been posted and discussed already. Sorry, I thought it was new.

https://healthycontrolblog.wordpress.com/2018/11/29/my-complaint-to-the-cochrane-governing-board-about-the-cochrane-review-of-exercise-for-chronic-fatigue-syndrome/?fbclid=IwAR2almTN_O7GT8CtPVvDWlKd1Ar11w3nzsMp9_V6FtjB5BUj5isZuRCtHhU Very good from Caroline Struthers My complaint to the...

LP coach Live Landmark looks forward to have a lecture on the researcher seminar (not the open day for patients and others, where David Tuller will be speaking, but the research seminar itself).

No. What we are talking about now, is the discussions in KGs FB page about Reuter.

Well, when one is certain of that the horrible ME activist are the root of all evil, Laruns words are only just.

Yes some did, but it seemed that they didn’t know who and what Cochrane is, they thought it was an ordinary scientific debate between Larun and others. And that’s kind of not the case.

He did that two days ago, reported both on Facebook and Twitter, how awful it was that even the Cochrane Institute now caved into pressure from activists. That there was no bright future for Science. I commented a lot on his Facebook, answering both him and others calmly, patient, and with lot...

That is quite positive, I agree. That said, the comment field at Dagens Medisin is not reliable. Anyone can post anything, make up a fake email address. This have been exploited, and can result in fun read sometimes. When “KS”answer “SK”, when “doctor nr 100” answer “doctor nr 10” and when...

An excellent piece written by Sigmund Olafsen. What is interesting now, is if someone replies. Some years ago, this would probably trigger some articles about how misguided the patients are, not knowing their best interest. My guess now is that eventually Henrik Vogt will respond in that way...

Ah, thank you, i was a bit worried about how some people saw us, much better with self-irony!

@andypants and @rvallee I have seen it had inpact on Facebook users too, a lot of prejudice coming to the surface. I was trying to stop/argue the worst misinterpretations, but got blocked and muted. This is on Norwegians FB pages. I don’t know if any of that could be used anywhere; but I have...

Is this really true? Does PACE show that GET reduses PEM? Sounds strange....as some of the other cfs_research says <blockquote class="twitter-tweet"><p lang="en" dir="ltr">And yet PACE found that GET reduced PEM. The difference is between exercise that is benecifial to patients, and that which...

I think he will see if you tag him. I’ve done that.

OMG