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Sorry, I haven’t a clue. Has to be someone else.

This is kind of interesting, so i wrote a Canadian professor in biochemistry if he could look at the Bohne paper. He said that the hypothesis in the paper is very vague; that the entire paper lacks scientific rigour. And he doesn’t see any compelling reason to pinpoint the particular catalytic...

That is true. There was some media attention when he died, and some people used that to promote his success story from Recovery on Twitter. I got involved, saying it is not good to promote a member of recovery’s success story at this time (even before the funeral) and also that he had had issues...

Another interesting fact from the blogpost, already in 2012 nearly 5000 Norwegians have attended LP. And surely some thousand after 2012. So for example 7000 in total. Recovery Norway counts perhaps a hundred of them, to be -very- generous. And they have promoted themselves and looked for new...

I have a guess: although there is no mention of me/cfs in the protocol, it will be an essential part of the paper.

Yep :( But not in the latest version, from 31. July 2019. The authors there: Mr Phil Parker. London Metropolitan Unviersity Ms Jacqueline Aston. Dr Lisa de Rijk.

In Nina Steinkopf’s excellent blog, there is a protocol of a LP review which is under way http://www.crd.york.ac.uk/PROSPERO/display_record.php?RecordID=104336&VersionID=1192539

Great. Thank you :)

Some of the links are nit good anymore. This one: Kindlon TP. Objective measures found a lack of improvement for CBT & GET in the PACE Trial: subjective improvements may simply represent response biases or placebo effects in this non‐blinded trial. BMJ Rapid Response 2015...

I am suspecting this piece came to try influence opinions in Denmark, before the vote in the parliament. Luckily they’ve already lost. ME is out of the functional disorders :thumbsup:

@andypants Skogli is not that bad, I was there fall 2018. I had a good “vacation” from my normal surroundings there, and I managed to attended most of the classes. That meant I had to have the meals in my room, but so be it. The place, the rooms, the people and the surroundings are great. What...

If there only was a way to troll them away.

It becomes more and more clear to me as well, that this is the situation also here. Stubhaug does not go out of his way to give a different impression, he says that you can get ME in your relationship or because a boring job. He is a psychiatrist end the theses of Eili is in psychology. What...

I also find this argument that neurasthenia nearly equals Fukuda in the thesis of Eili. “Farmer and co-workers (1995) found that the ICD-10 neurastenia definition identifies almost all patients with CDC-defined CFS, suggesting that neurasthenic criteria and the CDC definition overlap and that...

It seems like in the work by Eili from January 2009 until mai 2010 (the first period of the study) that they have defined that CFS oxford equals G93.3 (that one we know) and F 48 neurasthenia. Is that valid? Meaning F 48 is within oxford CFS.

One of the things that are problematic is that the case number of REKs approval has 2011 in it. It should be 2008, the study should be approved before it begins. And there are other things that are lacking which should disqualify the study from approval. It is kind of a mystery right now.

I am not sure. Headline: «Changes in health problems, functional levels, quality of life and coping in a general public psychiatric patient population: Effect of evidence-based interventions.» «The present course of study is an integral part of a contractual practice in psychiatry in...

So, I have gotten the study description/protocol, that was accepted by the research ethics comity. It describes something completely diferment, where CFS/ME is not at all in focus, hardly mentioned. Boom!

What really disappoints me it that some people retweet this and comment “This is really good” and so on. Not many, but some. Some people fall for it, even intelligent people. When I tweet back on the retweets: “we have to have a health system that cares for all sick - also those ME sick that...

This is not the end of the ME debate in Bergens Tidende. I wrote a piece that they rejected because there were several “answers” in the pipeline already. Edit; wrong word.