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I think one has to do both, be happy for what is now, and also be aware of that it may not last forever. Before KD I also had improvement of Rituximab that didn’t last. The first time, you think you have a new life. The third time, I am not telling anyone, one learns to be catious. I don’t think...

No I didn’t. I felt better almost from the first day, on my mood. One has to have energy to keep the spirit up, and lately I haven’t had that. But that changed almost day 1. Though, I think I am better now than then. I keep trying how the body works now, and today has been a very good day, the...

That’s great to hear @leokitten. I haven’t got any side effects either. But I still have PEM. I am going to try more doses. I am in this FB group “Abilify for ME/cfs” Anyway it is great not to be in bed as a much as I was before, I was also at 22-23 hours per day. Before keto, and before...

I am trying Abilify now, I started last week on 0,25mg/day and have increased to 0,5mg. I am certainly feeling better, but I haven’t started to increase activity much yet. Just enjoying feeling better/having better cognitive function. The last improvement I had was last year with the ketogenic...

This is interesting. I read that EBV is hosted by B cells, and Rituximab is taking them out. Wouldn’t that create a clear connection, insinuating improvement from Rituximab could be from deleting EBV hosted B cells?

I guess we will have the blame if there are no applicants, “ME activists” are creating so much controversy that no one wants to apply.

Wastwater, interesting :thumbup: Still no answer to my blood-tests. They’re certainly taking their time.

Yes? Sounds a bit strange. Does anybody know more? Anyway, about blood tests, measuring lactate and alanine can’t be done in every doctors office. I had to go to the one place in the capital of Norway that did it, and even them had to do preparations, and also having a second person to take the...

I have had good improvement of the ketogenic diet, so that is part of reason I find it interesting. I will start on the road to see if I have it, beginning with to measure laktat, pyruvat and alanin in the blood.

I read an interesting article in the Medical Association Magazine in Norway, google translate: https://translate.google.com/translate?sl=no&tl=en&u=https://tidsskriftet.no/2019/10/klinisk-oversikt/pyruvatdehydrogenasemangel Conclusion: PDH deficiency is a rare metabolic disease that causes...

And that was a good thing, which resulted in good research that is ongoing. The BPS crowd made some noice in the media although. Mainly because the Lightning Process research was turned down. They misrepresented that in media, that it was all because of the patient-involvement. But it wasn’t...

I have gone off the ketogenic diet for now. It stopped working. However it seems to have done good for me, but the energy increase was no longer there. But I have read more on PDH defiencency. Seems that the treatments for that is the ketogenic diet, DCA or large amounts of thiamine. One report...

Finally! It took some fights to get it in, but worth it. https://translate.google.no/translate?hl=no&sl=auto&tl=en&u=https://www.dagbladet.no/kultur/en-darlig-id/72559218

The last article in Dagbladet trashing ME sufferers by demonizing our “fear” of Lightning Process, has not been tweeted by the usual suspects, or been given any attention on social media as I have seen. I wonder why.

Also, here is Miek Jong final comment to Flottorp: “In case you want to further discuss this matter between the two of us or our institutes, please let me know, and accordingly we can plan a skype meeting.” What does Flottorp do? Some weeks later, she attac NAFKAM in the biggest tabloid...

Interesting point. One of the reasons might be that not so many psychologists know what LP is all about. That may implicate that it is wise to get out in the open what LP really is. Another is that some of the LP proponents are psychologists too. They’ve been on a course, and say that LP...

The recovery rate isn’t that impressive, no. I use 50 stories from recovery, to be nice and be on the safe side, And 5000 Norwegian that has taken LP. There are different numbers of that too, but 5000 seems safe. That means 1% recovery rate.

And make sure political editor ger@dagbladet.no also gets the email LP proponents have been really successful in Norway for many years, and I suspect one of the reasons is because they have been really watching and correcting what comes in media about LP. Maybe we can learn from that. Meaning...

That is so great that you have done this, @Michiel Tack. Thank you. I’ve seen the new Cochrane report has been used in arguments, this helps a lot :thumbup:

I do wonder if it is starting to sink in with his colleagues and bosses. And that they “force” him in the right direction, because this is what he is going to do now, the immune system and ironically, B cells. https://prosjektbanken.forskningsradet.no/#/project/NFR/302079