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As i see this study is very much used by the BPS crowd at least in Norway, it would be very good to have a comment like this in the journal to point to. The best place!

Yes, maybe, I am too impatient, I may do changes thing too fast, not allowing one change to work before I experiment with others. But, with regard to take Abilify morning vs evening, one should think that when you take it in the morning, some have disappeared in the body during the day...

interesting that the sleep benefits changed after a month or so. Hope it is still works that way. I responded also that way to Abilify, in the first month. it was really helping getting tired and go to sleep. It fixed my sleep and sleep cycle (still taking the same amount of sleep aid). But...

@TiredSam Have you sen anyone that has given Rituximab?

Well, I wouldn’t feel good taking that much, and I am very sure of my GP would not prescribe it. We are following the Stanford paper, anything else feels very unsafe. I am not sure I see all the talk about side effects in the FB group, but I don’t follow closely either. However I saw one asking...

Interesting. Thanks for updating.

How are you doing, @jonathan_h, has the improvement lasted?

Seems that my dose is 1,5mg/day. I would have liked it to be less, but well. Hopefully this dose will provide me benefits (and no side effects) for a long time.

Well, one could perhaps think that @leokitten was advocating in this thread in the last two pages. But then, it has resolved now, also other people voiced their opinions. I learn something every page of this discussion, lastly on the origin of this forum. Edit Took away one word

i completely understand that, and have seen many saying the same thing. Though I think differently, I was grateful that one doc in Norway offered Rituximab on the grounds of the positive phase 2 trial, I went to buy it, and were better. However it didn’t last. I would really like to try...

I have much of the same thoughts and experiences as leokitten. I also have had a steady decline, unless I found something that works, ketogenic diet last year, and Abilify this year. I wrote this when I entered this thread, that answer Trishs question, Good to hear you are still having...

As I see, no one of critics has addressed that the dose is far lower in ME than for psychiatric use. Far lower normally means that side effects should be more seldom.

I may have been to fast reporting that it stopped, but the last week was really back to being mostly bedbound again. But maybe 1,5mg, in fact works. Seems like that right now. I will try not to report again before I know for sure.

So the fun part seems to be over at my Abilify-trial. It simply stopped working, 3 days into 2mg/day. So now I am on my way down on the doses, first 1,75mg/day again. It may be a tiny hope that smaller dose might work again, but I don’t count on it. I have gotten done quite a few things that...

That’s interesting, do you know the title?

I followed closely at that time, I made a good donation to put it up to 22500, but it wasnt displayed until ten minutes later, and then, when my donation finally got in the list and summary, it got up to 22550, there was 5 donation in between. But then 5 minutes later, someone donated 2000...

I don’t know if Keith is here reading, but if he is, I’d like to say how very useful his studies are. More than one Norwegian professional/MD has gotten more knowledge as I have put forward the studies, learning more of the situation of pwme.

:thumbup::)

I will have a coffee as well. Now 22 550 pounds, 90% of target.

I can also update, there’s a bit of time since the last one. I have taken Abilify for a bit more that 2 months and I am still having good effect. But I have had to increase the doses regularly, around every 2-3 weeks to maintain the effect. I have had the effect since the start at 0,25mg/day...