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and there is a thread about the first Magenta results which couldn't find boom & bust, too https://www.s4me.info/threads/esther-crawley-2019-physical-activity-patterns-among-children-and-adolescents-with-mild-to-moderate-cfs-me-baseline-accelerometer-magenta-data.9141/ Esther Crawley (2019)...

nice to see that there is already a thread about boom & bust :)

I like this twitter thread by a ME patient or patient's mom

This would be a nice tweet at #MEawarenessHour :) Maybe we schould take more attention in advocacy to debunk this nonsense about boom & bust and perfectionists. I think even many patients aren’t aware of this.

terrible post corona CFS leaflet :grumpy:

I am worried, too. Covid19 could be the chance to take post viral illnesses more seriously but instead it could also result in more attention seeking by BPS proponents. this tweet seems sensible at first glance but could just mean you can claim post covid patients were anxious perfectionists...

I don't know if the differenciation between ME/CFS and Post intensive care syndrome will be that difficult. PICS patients will be older, ME/CFS often starts at an younger age. There will probably lots of different long term consequences of covid-19. One of these consequences could be self...

We had a severe foodborn illness outbreak with e. coli in Germany in 2011. https://en.wikipedia.org/wiki/2011_Germany_E._coli_O104:H4_outbreak There was a european conference of psychosomatic medicine in denmark in 2012. One lecture at this conference was about: „Psychosomatic outcome after...

Deutsche Welle, mixed online article with good and very weird passages :banghead: https://translate.google.com/translate?hl=de&sl=auto&tl=en&u=https://www.dw.com/de/chronisches-fatigue-syndrom-die-maximale-ersch%C3%B6pfung/a-52650545&sandbox=1

Many Thanks to Millions Missing Germany! Twitter:

It could be that spontaneous remissions in young people with ME/CFS are not rare...

The German ME/CFS Association posted a call on Facebook and Twitter:

The first time I've heard about the Complex Regional Pain Syndrome was in this German documentary about a young woman with a very severe case of this terrible disease. She nearly died and lost a leg. She had a long fight with her disability insurance.

a famous disability rights activist from Germany did tweet about #MEawarenesshour (the tweet includes a short good television report about a young very severe patient from may last year)

a tweet from a German ME-patient went viral, she used a hashtag about lonliness at christmas There are nice comments and questions from people from outiside the ME community, one person even asked where he can donate money to this cause the international #MEawarenesshour at twitter becomes...

there were quite a few good articles about ME/CFS in Germany since october radio report und article in Deutschlandfunk (big brodcasting station): Chronic Fatigue Syndrom - Outdated knowledge leads to incorrect treatment Chronic fatigue syndrome is, according to current studies, contrary to...