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Thanks Andy. I'm impressed how eloquent you are, how you focus on asking questions with no hint of an opinion, and let the participant feel comfortable and answer fully. I feel like I get to know the people behind the papers, presentations, and websites, and their work a bit better. Who is your...

This is the link to access the livestream (2:15pm Pacific, 10:15pm UK) that is on the eventbrite webpage https://www.youtube.com/channel/UCve6Cb4psAbhhZ34Rm1QNzQ/live

Totally agree. The missus was livid after reading it. What stood out for her was the "message" that the CDC can't do anything about educating doctors/health providers/states, and that the patients and patient supported organisations are in a better position to do this - I believe they even...

I found a study showing heart muscle thickening Paper : Impaired cardiac function in chronic fatigue syndrome measured using magnetic resonance cardiac tagging https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3627316/ If I understand right by referring to the text of the study, radial thickening is...

This study found heart issues @Jonathan Edwards Paper : Impaired cardiac function in chronic fatigue syndrome measured using magnetic resonance cardiac tagging https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3627316/ If I understand right by referring to the text of the study, radial thickening is...

okay, here are two of the best quotes from the NIH call ref: CDC/Unger transcript : https://www.nih.gov/research-traini...mecfs/nih-me/cfs-advocacy-call-august-19-2019 Thank you Sandy Stone Thank you Liz Burlingame [cut-off at that point]

Merged post @Emily Taylor Is this "Peer-Reviewed Medical Research Program" the same as the "Congressional Directed Medical Research Program" or is this a separate program? I want to get excited but I'm not really sure what this means, and if it is the BIG goal you've been fighting for in DC...

For those wanting to learn more see the NIH transcript from the NIH call last month where Unger from the CDC waffled was questioned- linked in this tweet from @Simon M who provided a CDC summary. Patients such as @Wilhelmina Jenkins did a good job calling out CDC BS. Folks calling in made it...

This was the commentary posted by Dysautonomia International in June (copied from a Facebook user, so sorry I don't have a source link). Researchers in Oaklahoma carrying out work on alpha-1 & beta-1 adrenergic auto-antibodies had doubts about the test they were working on and spent a long time...

Dysautonomia International have been funding studies in this area, but the researchers in Oaklahoma carrying out the work with their funding had doubts about the test and spent a long time figuring out that norepinephrine in serum samples can artificially elevate a1AR and ß1AR activity. It's not...

Hi @Andy, was there any "behind the camera" discussion on Karl Morten's phenylalanine work which was brought up on the original question thread. I ask as there was a little blackout booboo at the Emerge conference, if I remember right, where one presenter described in words interesting...

I found this NIH site on Mitochondrial complex V deficiency interesting https://ghr.nlm.nih.gov/condition/mitochondrial-complex-v-deficiency If I remember right haven't there been some studies showing thickening of the heart wall in ME?