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Yes. I get green goop coming out of my nose. Lots of tissues needed.

I really don't know why anybody bothers to ask questions in the House of Commons/Lords when all they get in response is always a totally duplicitous answer. He says most people in receipt of PIP will still continue to get PIP. Well yes, technically that is correct, but they will get half the...

I imagine Wessley's colleagues must be absolutely sickened by this. So many awards for achieving precisely zero in his entire career. Yet those who get down to the work and actually help patients, go unrecognised. It is the same in every walk of life, not just medicine. The honours system is so...

I had to attend A&E with my partner who was in excruciating pain with a migraine that had him screaming on the floor. He usually has to be injected with morphine at that point. No ambulance would come out, so despite having severe ME, I had to crawl to my car, drive him to the hospital, and then...

Just wrote to my MP to object to the PIP reforms. I have had severe ME for 25 years. No other benefits just a tiny occupational pension. Mostly bedridden. I checked my PIP award letter. I will be one of those who will lose their PIP as I did not score 4 or more in any category. I asked my MP if...

Absolutely. I was told to try Tai Chi 20 years ago. I discovered it is absolutely impossible to do with OI.

It was always my understanding that a claimant had to be able to do the activity "reliably" and in a reasonable amount of time. Given that ME is a fluctuating condition, I would always just tick the box that says you can't do the activity at all. I have never met anybody with any condition who...

Yes. I find they are better then drugs for falling asleep to. Of course it is a bit disconcerting when you nod off and then wake up to discover a new character has been introduced who you have never heard of. The other night I woke up to hear that "Billy had fallen into a pond. No idea who...

Do you know what ME is logged under? Is it logged under neurological conditions or psychiatric conditions? Many years ago when I was awarded an occupational pension by the Civil Service, my retirement was coded under "depression". I pointed out that I had never had even a day of depression, and...

Endless research about the benefits of Vitamin D. Am I the only person who can't take this stuff? After 3 days of even a low dose I develop terrible brain fog.

Sorry for the delayed reply. I was dealing with my husband's stalker. Very stressful. I bought a Jasmine silk duvet from Amazon. I can't remember why I chose that one. Probably just because it was on Amazon and I was too tired to do any research !

I've tried a silk duvet. During my menopause I was on an endless search for the holy grail of duvets. I tried wool, but still had night sweats. In the end I bought a silk one. It was by far the best for regulating my temperature at night. In the winter I use two. They weren't much more...

If you Google shingles on shoulder, I think you will find some photos of it in that location. I had it on my head. I had no idea you could get it there either! Hope you feel better soon. I felt a bit unwell for a couple of weeks. Blisters lasted about a month.

I understand what you mean. I have had Covid definitely 3 times. Possibly 4. I am not saying it is a pleasant experience (it isn't!), but I have noticed a definite improvement in my ME since my last bout of covid in July. I am unvaccinated though. I didn't take any vaccines because I caught...

I usually feel all round much better when I am ill. I got the very first version of Covid and actually felt fantastic and super energised, even though I had a fever and a host of other symptoms. I have not had the same response to subsequent doses of Covid. Though I always sleep better.

I have found that my cognitive symptoms deteriorate more with emotional or sensory exertion. Whereas, my pain levels increase more if I have physical exertion. I am currently dealing with the police a lot, as my husband has acquired a female stalker. I am not exerting myself physically at all...

Having recently seen my mother in law on a hospital ward full of very elderly people, I think the elderly of both sexes probably win the prize for being treated terrriibly by medical staff. I even had to have a row with a discharge nurse who was accusing her of bed blocking. I could see she was...

My schizophrenic cousin was one of these people. He had taken to drinking very heavily as it seemed to block out the voices in his head far better than any medication. He never went to the doctor for anything. I think a lot of mentally ill people avoid the medical profession as much as...

I read the article in the Guardian. I didn't find it that insulting as the poor woman has clearly been extremely ill and isn't really "recovered" in any meaningful sense of the word. She just got a plant and it gave her a reason to keep going in life. I think the world is divided into 2 types...

It was a survey I saw somewhere last week. Sadly my brain is so useless, I can't remember where. I will probably remember in about a weeks time, in the middle of the night!